ArticleJournal of Alzheimer's disease : JAD2018
The Effects and Meanings of Receiving a Diagnosis of Mild Cognitive Impairment or Alzheimer's Disease When One Lives Alone.
Article in Journal of Alzheimer's disease : JAD, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06221202 (Stories in the Moment), which is not on this map. Cited by 25 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Stories in the Moment: Dance Program for People Living With Dementia
Who cites it
25 citing papers in PubMed, 39 citations in OpenAlex.
- Examining Help-Seeking Behavior in People Living Alone With Cognitive Impairment.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- Is to persevere dangerous for brain health? Effect of active coping and grit on subjective cognitive decline in Black American males.Alzheimer's & dementia. Behavior & socioeconomics of aging · 2025Article
- Specific cultural traits of the precarity of older Latinos living alone with cognitive impairment in the San Francisco Bay Area.Aging & mental health · 2025Article
- "How do You Take that Much Time for One Person's Life?" Experiences of Dementia Caregivers Who are Not Immediate Family.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- Characteristics, Needs, and Perspectives of Individuals Living Alone With Dementia: An Integrative Review.Health science reports · 2025Article
- Proactive Care-Seeking Strategies Among Adults Aging Solo With Early Dementia: A Qualitative Study.The journals of gerontology. Series B, Psychological sciences and social sciences · 2024Article
- "Relationships, Very Quickly, Turn to Nothing": Loneliness, Social Isolation, and Adaptation to Changing Social Lives Among Persons Living With Dementia and Care Partners.The Gerontologist · 2024Article
- An outcome-wide analysis of the effects of diagnostic labeling of Alzheimer's disease and related dementias on social relationships.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2024Article
- Exploring the lived experience: impact of dementia diagnosis on individuals with cognitive impairment - a qualitative study.BMC geriatrics · 2024Article
- Perceptions of the Role of Living Alone in Providing Services to Patients With Cognitive Impairment.JAMA network open · 2023Article
- Addressing Suicide Risk in Patients Living With Dementia During the COVID-19 Pandemic and Beyond.The Gerontologist · 2022Article
- The Living Alone with Cognitive Impairment Project's Policy Advisory Group on Long-Term Services and Supports: Setting a Research Equity Agenda.International journal of environmental research and public health · 2022Article
- Do Perceptions of Cognitive Changes Matter in Self-Management Behaviors Among Persons With Mild Cognitive Impairment?The Gerontologist · 2022Article
- Challenge of a dual burden in rapidly aging Delaware: Comorbid chronic conditions and subjective cognitive decline.PLOS global public health · 2022Article
- Racial and ethnic disparities in subjective cognitive decline: a closer look, United States, 2015-2018.BMC public health · 2021Article
- The Effects of the COVID-19 Pandemic on the Lived Experience of Diverse Older Adults Living Alone With Cognitive Impairment.The Gerontologist · 2021Article
- Ambivalent anticipation: How people with Alzheimer's disease value diagnosis in current and envisioned future practices.Sociology of health & illness · 2021Article
- SARS-CoV-2 Susceptibility and COVID-19 Mortality Among Older Adults With Cognitive Impairment: Cross-Sectional Analysis From Hospital Records in a Diverse US Metropolitan Area.Frontiers in neurology · 2021Article
- Stroke and Heart Attack Symptom Recognition in Older US Adults by Cognitive Impairment Status.Neuroepidemiology · 2021Article
- Expectations and Concerns of Older Adults With Cognitive Impairment About Their Relationship With Medical Providers: A Call for Therapeutic Alliances.Qualitative health research · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 4 institutions in 1 country.
Funding
Abstract
backgroundOne third of older adults with cognitive impairment live alone and are at high risk for poor health outcomes. Little is known about how older adults who live alone experience the process of receiving a diagnosis of mild cognitive impairment (MCI) or Alzheimer's disease (AD).
objectiveThe aim of this study was to understand the effects and meanings of receiving a diagnosis of MCI or AD on the lived experience of older adults living alone.
methodsThis is a qualitative study of adults age 65 and over living alone with cognitive impairment. Participants' lived experiences were elicited through ethnographic interviews and participant observation in their homes. Using a qualitative content analysis approach, interview transcripts and fieldnotes were analyzed to identify codes and themes.
resultsTwenty-nine older adults and 6 members of their social circles completed 114 ethnographic interviews. Core themes included: relief, distress, ambiguous recollections, and not knowing what to do. Participants sometimes felt uplifted and relieved by the diagnostic process. Some participants did not mention having received a diagnosis or had only partial recollections about it. Participants reported that, as time passed, they did not know what to do with regard to the treatment of their condition. Sometimes they also did not know how to prepare for a likely worsening of their condition, which they would experience while living alone.
conclusionFindings suggest the need for more tailored care and follow-up as soon as MCI or AD is diagnosed in persons living alone.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.