Evidence map›Paper›PMID 29373964›Full record

ArticleBMC palliative care2018

Palliative and end-of-life care research in Scotland 2006-2015: a systematic scoping review.

Anne M Finucane, Emma Carduff, Jean Lugton, Stephen Fenning, Bridget Johnston, Marie Fallon, David Clark, Juliet A Spiller, Scott A Murray

Abstract readScoping Review
In one paragraph

Article in BMC palliative care, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 3 syntheses or guidelines pooled it.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Anne M FinucaneMarie Curie Hospice Edinburgh, 45 Frogston Road West, Edinburgh, EH10 7DR, UK. anne.finucane@mariecurie.org.uk.ORCID http://orcid.org/0000-0002-3056-059X
Emma CarduffMarie Curie Hospice Glasgow, 133 Balornock Road, Glasgow, G21 3US, UK.
Jean LugtonMarie Curie Hospice Edinburgh, 45 Frogston Road West, Edinburgh, EH10 7DR, UK.
Stephen FenningWestern General Hospital, Crewe Road South, Edinburgh, EH4 2XU, UK.
Bridget JohnstonFlorence Nightingale Foundation, Clinical Nursing Practice Research, School of Medicine, Dentistry & Nursing, College of Medical, Veterinary & Life Sciences, University of Glasgow and NHS Greater Glasgow and Clyde, 57-61 Oakfield Avenue, Glasgow, G12 8LL, UK.
Marie FallonInstitute of Genetics and Palliative Medicine, University of Edinburgh, Western General Hospital, Edinburgh, EH4 2XR, UK.
David ClarkSchool of Interdisciplinary Studies, University of Glasgow, Bankend Road, Dumfries, DG1 4ZL, UK.
Juliet A SpillerMarie Curie Hospice Edinburgh, 45 Frogston Road West, Edinburgh, EH10 7DR, UK.
Scott A MurrayCentre for Population Health Sciences, The Usher Institute of Population Health Sciences and Informatics, University of Edinburgh, Old Medical School, Teviot Place, Edinburgh, EH8 9AG, UK.

Funding

Marie Curie MCCC-RP-12-A14197Marie Curie MCCC-RP-15-A18862Marie Curie MCCC-RP-15-A19005Marie Curie MCCC-RP-16-A20997Marie Curie MCRGS-20171220-8018
6 · The paper itself

Abstract

backgroundThe Scottish Government set out its 5-year vision to improve palliative care in its Strategic Framework for Action 2016-2021. This includes a commitment to strengthening research and evidence based knowledge exchange across Scotland. A comprehensive scoping review of Scottish palliative care research was considered an important first step. The aim of the review was to quantify and map palliative care research in Scotland over the ten-year period preceding the new strategy (2006-15).

methodsA systematic scoping review was undertaken. Palliative care research involving at least one co-author from a Scottish institution was eligible for inclusion. Five databases were searched with relevant MeSH terms and keywords; additional papers authored by members of the Scottish Palliative and End of Life Care Research Forum were added.

resultsIn total, 1919 papers were screened, 496 underwent full text review and 308 were retained in the final set. 73% were descriptive studies and 10% were interventions or feasibility studies. The top three areas of research focus were services and settings; experiences and/or needs; and physical symptoms. 58 papers were concerned with palliative care for people with conditions other than cancer - nearly one fifth of all papers published. Few studies focused on ehealth, health economics, out-of-hours and public health. Nearly half of all papers described unfunded research or did not acknowledge a funder (46%).

conclusionsThere was a steady increase in Scottish palliative care research during the decade under review. Research output was strong compared with that reported in an earlier Scottish review (1990-2005) and a similar review of Irish palliative care research (2002-2012). A large amount of descriptive evidence exists on living and dying with chronic progressive illness in Scotland; intervention studies now need to be prioritised. Areas highlighted for future research include palliative interventions for people with non-malignant illness and multi-morbidity; physical and psychological symptom assessment and management; interventions to support carers; and bereavement support. Knowledge exchange activities are required to disseminate research findings to research users and a follow-up review to examine future research progress is recommended.

Indexed as

HumansNeoplasmsPublishingResearchScotlandTerminal CareCancerEnd-of-lifeHospiceKnowledge exchangeNon-cancerPalliativePolicyResearchScoping review

Identifiers

PMID29373964
PMCPMC5787303

What OpenQuestion holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.