Evidence map›Paper›PMID 29373300›Full record

ArticleThe American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry2018

"The Filter is Kind of Broken": Family Caregivers' Attributions About Behavioral and Psychological Symptoms of Dementia.

Courtney A Polenick, Laura M Struble, Barbara Stanislawski, Molly Turnwald, Brianna Broderick, Laura N Gitlin, Helen C Kales

Abstract read
In one paragraph

Article in The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
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  14. Traditional and Non-traditional Caregivers Define "Family" and Caregiving Obligations.American journal of Alzheimer's disease and other dementias
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4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

7 authors.

Courtney A PolenickDepartment of Psychiatry, University of Michigan, Ann Arbor, MI. Electronic address: cpolenic@med.umich.edu.
Laura M StrubleSchool of Nursing, University of Michigan, Ann Arbor, MI.
Barbara StanislawskiDepartment of Psychiatry, University of Michigan, Ann Arbor, MI.
Molly TurnwaldDepartment of Psychiatry, University of Michigan, Ann Arbor, MI.
Brianna BroderickDepartment of Psychiatry, University of Michigan, Ann Arbor, MI.
Laura N GitlinDepartment of Community Public Health, School of Nursing, Johns Hopkins University, Baltimore, MD; Division of Geriatrics and Gerontology, School of Medicine, Johns Hopkins University, Baltimore, MD; Center for Innovative Care on Aging, Johns Hopkins University, Baltimore, MD.
Helen C KalesDepartment of Psychiatry, University of Michigan, Ann Arbor, MI; Department of Veterans Affairs, HSR&D Center for Clinical Management Research (CCMR), Ann Arbor, MI; Geriatric Research, Education and Clinical Center (GRECC), VA Ann Arbor Healthcare System, Ann Arbor, MI.

Funding

Training Geriatric Mental Health Services ResearchersT32MH073553 · NIMH · DARTMOUTH-HITCHCOCK CLINIC · PI BRUCE, MARTHA L · 2005 to 2019
$6.4M
Reducing Agitation in Dementia Patients at Home: The Customized Activity TrialR01AG041781 · NIA · JOHNS HOPKINS UNIVERSITY · PI GITLIN, LAURA N. · 2012 to 2017
$3.3M
An Innovative Caregiver Tool to Assess and Manage Behavioral Symptoms of DementiaR01NR014200 · NINR · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI GITLIN, LAURA N., KALES, HELEN C · 2012 to 2015
$1.6M
NIA NIH HHS R01 AG041781NIMH NIH HHS T32 MH073553NINR NIH HHS R01 NR014200
6 · The paper itself

Abstract

objectivesBehavioral and psychological symptoms of dementia (BPSD) are common, often challenging to manage, and may erode caregivers' well-being. Few studies have explored caregivers' perspectives of what causes these behaviors, but such attributions may be important-particularly if they negatively impact the care dyad. This study examined causal attributions about BPSD among individuals caring for a family member with dementia.

designIn-depth qualitative data were obtained from family caregivers of older adults with dementia.

settingAs part of a larger study (NINR R01NR014200), four focus groups were conducted with caregivers by an experienced facilitator.

participantsA total of 26 family caregivers participated in the four focus groups. MEASUREMENTS: Caregivers reported their own attributions about the causes of their care recipient's BPSD. Sessions were audio-recorded. Data were transcribed, coded to determine relevant concepts, and reduced to identify major categories.

resultsFive categories were determined. Caregivers attributed BPSD to: 1) neurobiological disease factors; 2) physical symptoms or comorbid health conditions; 3) psychological reactions to dementia; 4) shifting social roles and relationships following dementia onset; and 5) environmental changes such as lack of routine and medical transitions (e.g., hospitalization). Despite this seemingly multifactorial attribution to BPSD etiology, a number of respondents also indicated that BPSD were at least partly within the care recipient's control.

conclusionsFamily caregivers attribute BPSD to a range of care recipient and environmental factors. Caregivers' own causal beliefs about BPSD may reflect unmet educational needs that should be considered in the development of targeted interventions to minimize caregiving stress.

Indexed as

Adaptation, PsychologicalAdultAgedAged, 80 and overBehavioral SymptomsCaregiversDementiaFemaleFocus GroupsHumansMaleMiddle AgedPerceptionQualitative ResearchStress, PsychologicalYoung Adultfocus groupInformal caregivingneuropsychiatric symptoms of dementiaqualitative data analysis

Identifiers

PMID29373300
PMCPMC6619504

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.