ArticleJournal of empirical research on human research ethics : JERHRE2018
From "a Fair Game" to "a Form of Covert Research": Research Ethics Committee Members' Differing Notions of Consent and Potential Risk to Participants Within Social Media Research.
Article in Journal of empirical research on human research ethics : JERHRE, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
14 citing papers in PubMed.
- Ethical guidance for conducting health research with online communities: A scoping review of existing guidance.PloS one · 2024Article
- Views on sharing mental health data for research purposes: qualitative analysis of interviews with people with mental illness.BMC medical ethics · 2023Article
- Article
- "He's under oath": Privacy and Confidentiality Views Among People Who Inject Drugs Enrolled in a Study of Social Networks and Human Immunodeficiency Virus/Hepatitis C Virus Risk.Journal of empirical research on human research ethics : JERHRE · 2021Article
- Ethics review of big data research: What should stay and what should be reformed?BMC medical ethics · 2021Review
- Real World Effectiveness of Information and Communication Technologies in Disaster Relief: A Systematic Review.Iranian journal of public health · 2020Review
- Article
- To end disease tomorrow, begin with trials today: Digital strategies for increased awareness of a clinical trials finder.Journal of clinical and translational science · 2019Article
- Recent Advances in Using Natural Language Processing to Address Public Health Research Questions Using Social Media and ConsumerGenerated Data.Yearbook of medical informatics · 2019Article
- Ethical and Regulatory Considerations for Using Social Media Platforms to Locate and Track Research Participants.The American journal of bioethics : AJOB · 2019Article
- Article
- Reasoning "Uncharted Territory": Notions of Expertise Within Ethics Review Panels Assessing Research Use of Social Media.Journal of empirical research on human research ethics : JERHREArticle
- The Challenges of Big Data for Research Ethics Committees: A Qualitative Swiss Study.Journal of empirical research on human research ethics : JERHREArticle
- Researching Experiences of Cancer Risk Through Online Blogs: A Reflexive Account of Working Toward Ethical Practice.Journal of empirical research on human research ethics : JERHREArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
Social media (SM) research presents new challenges for research ethics committees (RECs) who must balance familiar ethical principles with new notions of public availability. This article qualitatively examines how U.K. REC members view this balance in terms of risk and consent. While it found significant variance overall, there were discernible experience-based trends. REC members with less experience of reviewing SM held inflexible notions of consent and risk that could be categorized as either relying on traditional notions of requiring direct consent, or viewing publicly available data as "fair game." More experienced REC members took a more nuanced approach to data use and consent. We conclude that the more nuanced approach should be best practice during ethical review of SM research.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.