ArticleHealth expectations : an international journal of public participation in health care and health policy2018
Patient, carer and public involvement in major system change in acute stroke services: The construction of value.
Article in Health expectations : an international journal of public participation in health care and health policy, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed.
- A global multilingual cocreation of aphasia priority topics through patient and public involvement.Research involvement and engagement · 2026Article
- Rationalizing the Influence of Co-Design on Distress, Clinical Decision-Making and Disease Self-Management of Cancer Patients-as-Partners: A Quasi-Experimental Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- The development of the People with Aphasia and Other Layperson Involvement (PAOLI) framework for guiding patient and public involvement (PPI) in aphasia research.Research involvement and engagement · 2023Article
- Patient engagement in the development and delivery of healthcare services: a systematic scoping review.BMJ open quality · 2023Article
- Implementation of a patient-reported experience measure in a Dutch disability care organization: A process evaluation of cocreated tailored strategies.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Contributors are representative, as long as they agree: How confirmation logic overrides effort to achieve synthesis in applied health research.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Organisation, influence, and impact of patient advisory boards in rehabilitation institutions-an explorative cross-sectional study.BMC musculoskeletal disorders · 2022Article
- Mapping the role of patient and public involvement during the different stages of healthcare innovation: A scoping review.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Ensuring patient and public involvement in the transition to AI-assisted mental health care: A systematic scoping review and agenda for design justice.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Stakeholder engagement from problem analysis to implementation strategies for a patient-reported experience measure in disability care: A qualitative study on the process and experiences.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Nursing Value Analysis and Risk Evaluation of Acute Gastroenterology Diseases.Journal of healthcare engineering · 2021Article
- Changing health care with, for, or against the public: an empirical investigation into the place of the public in health service reconfiguration.Journal of health services research & policy · 2021Article
- Implementing major system change in specialist cancer surgery: The role of provider networks.Journal of health services research & policy · 2021Article
- Between funder requirements and 'jobbing scientists': the evolution of patient and public involvement in a mental health biomedical research centre - a qualitative study.Research involvement and engagement · 2020Article
- How organisations contribute to improving the quality of healthcare.BMJ (Clinical research ed.) · 2019Article
- Patient, carer and public involvement in major system change in acute stroke services: The construction of value.Health expectations : an international journal of public participation in health care and health policy · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
backgroundPatient and public involvement is required where changes to care provided by the UK National Health Service are proposed. Yet involvement is characterized by ambiguity about its rationales, methods and impact.
aimsTo understand how patients and carers were involved in major system changes (MSCs) to the delivery of acute stroke care in 2 English cities, and what kinds of effects involvement was thought to produce.
methodsAnalysis of documents from both MSC projects, and retrospective in-depth interviews with 45 purposively selected individuals (providers, commissioners, third-sector employees) involved in the MSC.
resultsInvolvement was enacted through consultation exercises; lay membership of governance structures; and elicitation of patient perspectives. Interviewees' views of involvement in these MSCs varied, reflecting different views of involvement per se, and of implicit quality criteria. The value of involvement lay not in its contribution to acute service redesign but in its facilitation of the changes developed by professionals. We propose 3 conceptual categories-agitation management, verification and substantiation-to identify types of process through which involvement was seen to facilitate system change. DISCUSSION: Involvement was seen to have strategic and intrinsic value. Its strategic value lay in facilitating the implementation of a model of care that aimed to deliver evidence-based care to all; its intrinsic value was in the idea of citizen participation in change processes as an end in its own right. The concept of value, rather than impact, may provide greater traction in analyses of contemporary involvement practices.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.