Evidence map›Paper›PMID 29331657›Full record

ArticleDisability and health journal2018

Views of teenage children about the effects of a Parent's mobility disability.

Lisa I Iezzoni, Amy J Wint, Alexy Arauz Boudreau, Cheri A Blauwet, Karen A Kuhlthau

Abstract read
In one paragraph

Article in Disability and health journal, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Lisa I IezzoniMongan Institute Health Policy Center, Massachusetts General Hospital, USA; Department of Medicine, Harvard Medical School, USA. Electronic address: liezzoni@mgh.harvard.edu.
Amy J WintMongan Institute Health Policy Center, Massachusetts General Hospital, USA.
Alexy Arauz BoudreauDepartment of Pediatrics, Massachusetts General Hospital for Children, USA; Department of Pediatrics, Harvard Medical School, USA.
Cheri A BlauwetSpaulding Rehabilitation Network, USA; Department of Physiatry, Harvard Medical School, USA.
Karen A KuhlthauDepartment of Pediatrics, Massachusetts General Hospital for Children, USA; Department of Pediatrics, Harvard Medical School, USA.

Funding

Exploring Young Children Giving Personal Assistance Services to Disabled ParentsR21HD073553 · NICHD · MASSACHUSETTS GENERAL HOSPITAL · PI IEZZONI, LISA I. · 2013 to 2014
$471k
NICHD NIH HHS R21 HD073553
6 · The paper itself

Abstract

backgroundFew U.S. studies have explored how children experience a parent's mobility disability and its effects on their daily lives.

objectiveWe aimed to engage youth ages 13-17 who had at least one parent with mobility disability in describing their perceptions of their parent's disability and its consequences for their daily and family life.

methodsParticipants videoed and photographed their experiences following general guidelines from the researchers about topics of interest. Participants made their own choices about what they submitted. We used conventional content analysis to identify broad themes.

resultsThe mean (standard deviation) age of the 10 participants was 15.2 (1.9) years; 5 were male; 9 participants were white. All 5 girls submitted multiple self-focused (selfie) videos made in their bedrooms; the 5 boys submitted more diverse data files. Several broad themes or topics emerged including: the effects of timing and trajectory of the parent's disability; perceptions of early maturity and responsibility; fears and frustrations relating to the parent's disability; support and emerging resilience; and sense of social justice. Participants generally felt their parents' disability made them become - compared to their peers - more mature, responsible, capable of performing household tasks, and aware of disability civil rights.

conclusionsParticipants raised many issues that health care providers should be aware of when youth have parents with mobility disability. A parent's mobility disability may be associated with resilience but also may pose challenges for youth. More research is needed to understand better adolescents' experiences and how clinicians might best assist these youth.

Indexed as

EmotionsParent-Child RelationsParentsPersons with DisabilitiesAdolescentAdultFamilyFemaleHealth Services Needs and DemandHumansMaleRacial GroupsResilience, PsychologicalUnited StatesCaregivingChildDisabilityParent

Identifiers

PMID29331657
PMCPMC6005728

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.