ArticleJournal of general internal medicine2018
Twelve Lessons Learned for Effective Research Partnerships Between Patients, Caregivers, Clinicians, Academic Researchers, and Other Stakeholders.
Article in Journal of general internal medicine, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 45 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
45 citing papers in PubMed, 1 synthesis or guideline pooled it, 90 citations in OpenAlex.
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- "Inclusivity requires an active effort": building an inclusive and diverse space when engaging people with lived and living experience and caregivers in mental health and substance use health research.Research involvement and engagement · 2025Article
- How does integrated knowledge translation work? A realist review.Health research policy and systems · 2025Review
- [Making prostate cancer research accessible: chatGPT-4 as a tool to enhance lay communication].Urologie (Heidelberg, Germany) · 2025Article
- Partnering for impact: best practices for planning in-person academic events with Patient Partners involvement- Lessons learned from Diabetes Action Canada.Research involvement and engagement · 2025Article
- Exploring the role of Patient and Public Involvement in Implementation Research using the Study of Implementation of Midwifery Continuity of Carer (SIMCA).NIHR open research · 2025Article
- 'Motivating Implicit Chinese to Express Themselves Is the Biggest Barrier': A Qualitative Study of Chinese Researchers' Perceptions of Barriers and Facilitators to Patient Engagement in Research.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Building Relationships, Forming Collaborations: Lessons Learned From an Unconference Seeking to Cultivate Solutions in Healthcare.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Lessons learned from CMS's National Partnership to Improve Dementia Care: a thematic synthesis of multiple stakeholder-engaged studies.Psychogeriatrics : the official journal of the Japanese Psychogeriatric Society · 2024Article
- Co-production of a systematic review on decision coaching: a mixed methods case study within a review.Systematic reviews · 2024Article
- Ready, set, co(produce): a co-operative inquiry into co-producing research to explore adolescent health and wellbeing in the Born in Bradford Age of Wonder project.Research involvement and engagement · 2024Article
- Strengthening research networks: Insights from a clinical research network in Brazil.PloS one · 2024Article
- A virtuous cycle of co-production: Reflections from a community priority-setting exercise.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Development of the Preferred Components for Co-Design in Research Guideline and Checklist: Protocol for a Scoping Review and a Modified Delphi Process.JMIR research protocols · 2023Article
- Partnering with patients and caregivers to enrich research and care in kidney disease: values and strategies.Clinical kidney journal · 2023Review
- Article
- Nothing about us without us: A co-production strategy for communities, researchers and stakeholders to identify ways of improving health and reducing inequalities.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Supporting patient and public partners in writing lay summaries of scientific evidence in healthcare: a scoping review protocol.BMJ open · 2022Article
- Engaging with patients in research on knowledge translation/implementation science methods: a self study.Research involvement and engagement · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
18 authors at 12 institutions in 2 countries.
Funding
Abstract
Research increasingly means that patients, caregivers, health professionals, other stakeholders, and academic investigators work in partnership. This requires effective collaboration rooted in mutual respect, involvement of all participants, and good communication. Having conducted such partnered research over multiple projects, and having recently completed a project together funded by the Patient-Centered Outcomes Research Institute, we collaboratively developed a list of 12 lessons we have learned about how to ensure effective research partnerships. To foster a culture of mutual respect, hold early in-person meetings, with introductions focused on motivation, offer appropriate orientation for everyone, and maintain awareness of individual and project goals. To actively involve all team members, it is important to ensure sufficient funding for everyone's participation, to ask for and recognize diverse contributions, and to seek the input of quiet members. To facilitate good communication, teams should carefully consider labels, avoid jargon and acronyms, judiciously use homogeneous and heterogeneous subgroups, and keep progress visible. In offering pragmatic, actionable lessons we have learned through our separate and shared experiences, we hope to help foster more patient-centered research via productive and enjoyable research collaborations.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.