SynthesisBMJ open2018
Young adults' perspectives on living with kidney failure: a systematic review and thematic synthesis of qualitative studies.
Synthesis in BMJ open, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
26 citing papers in PubMed, 2 syntheses or guidelines pooled it, 63 citations in OpenAlex.
- The psychosocial factors influencing paediatric kidney transplantation access, their outcomes and the patient and family's perceived quality of life: a systematic review and meta-analysis.Pediatric nephrology (Berlin, Germany) · 2026Pooled it
- Adolescents' experiences of fluctuating pain in musculoskeletal disorders: a qualitative systematic review and thematic synthesis.BMC musculoskeletal disorders · 2020Pooled it
- Halitosis in young patients with chronic kidney disease: findings from a randomized controlled trial.Head & face medicine · 2024Trial
- The Palliation of Pediatric Kidney Transplantation.Pediatric transplantation · 2026Review
- Perspectives on Peritoneal Dialysis and Kidney Transplant in Adolescents and Young Adults: A Qualitative Study.Kidney medicine · 2026Article
- The impact of chronic kidney disease on patient and caregiver quality of life: A qualitative study in Spain.PloS one · 2026Observational
- Qualitative study on the sense of meaning in life in uremic patients undergoing initial hemodialysis.International journal of qualitative studies on health and well-being · 2025Article
- Patient satisfaction with dialysis services provided across different providers in Saudi Arabia.Frontiers in nephrology · 2025Article
- Investigation of Social Constraints, Psychosocial Adjustment and Optimism among Dialysis Patients.Clinics and practice · 2024Article
- Connect-ROD - development and qualitative evaluation of a community-based group intervention to support well-being in patients with a rare or orphan disease.Orphanet journal of rare diseases · 2024Article
- Holistic care and symptom management for pediatric kidney transplant recipients.Pediatric nephrology (Berlin, Germany) · 2024Article
- Socioeconomic Position and Health Among Children and Adolescents With CKD Across the Life-Course.Kidney international reports · 2024Review
- Psychosocial Health Among Young Adults With Kidney Failure: A Longitudinal Follow-up of the SPEAK (Surveying Patients Experiencing Young Adult Kidney Failure) Study.Kidney medicine · 2024Article
- Psychological Health in Young Adults With Kidney Failure: A 5-Year Follow-up of the SPEAK Study.Kidney medicine · 2023Article
- Patient education interventions for adolescent and young adult kidney transplant recipients- a scoping review.PloS one · 2023Article
- The psychosocial needs of adolescent and young adult kidney transplant recipients, and associated interventions: a scoping review.BMC psychology · 2022Article
- A "pretty normal" life: a qualitative study exploring young people's experience of life with bronchiectasis.International journal of qualitative studies on health and well-being · 2021Article
- Psychological Backgrounds of Medically Compromised Patients and Its Implication in Dentistry: A Narrative Review.International journal of environmental research and public health · 2021Review
- Daily life participation in childhood chronic disease: a qualitative study on the child's and parent's perspective.BMJ paediatrics open · 2021Article
- Associations with kidney transplant survival and eGFR decline in children and young adults in the United Kingdom: a retrospective cohort study.BMC nephrology · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 5 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionYoung adults fare worse than younger adolescents or older adults on a broad range of health indicators. Those with a chronic illness such as renal failure are a particularly vulnerable group, who experience poor outcomes compared with both children and older adults. Understanding how being in receipt of renal replacement therapy (RRT) affects the lives of young adults might help us to better prepare and support these individuals for and on RRT, and improve outcomes. This study aimed to synthesise research describing young adults' experiences of the psychosocial impact of kidney failure and RRT.
designA systematic literature review identified qualitative research reporting the perspectives of people aged 16-30 years receiving RRT on the psychosocial impact of renal failure. Electronic databases (including Medline/EMBASE/PsycINFO/ASSIA) were searched to November 2017 for full-text papers. The transparency of reporting of each study was assessed using the Consolidated Criteria for Reporting Qualitative Health Research (COREQ) framework. Quality was assessed using the Critical Appraisal Skills Programme qualitative checklist. An inductive thematic synthesis was undertaken.
participantsSeven studies from five different countries were included, comprising 123 young adults receiving RRT.
resultsComprehensiveness of reporting was variable: studies reported 9-22 of the 32 COREQ-checklist items.Three global themes about the impact of kidney failure on young adults were identified: (1) difference desiring normality, (2) thwarted or moderated dreams and ambitions, and (3) uncertainty and liminality. These reflected five organising themes: (1) physical appearance and body image, (2) activity and participation, (3) educational disruption and underachievement, (4) career ambitions and employment difficulties, and (5) social isolation and intimate relationships.
conclusionsAcross different countries and different healthcare settings, young adults on RRT experience difference and liminality, even after transplantation. Tailored social and psychological support is required to allow young adults to experience wellness while in receipt of RRT, and not have life on hold.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.