ArticleJournal of diabetes science and technology2018
Motivations for Participation in an Online Social Media Community for Diabetes.
Article in Journal of diabetes science and technology, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
31 citing papers in PubMed, 1 synthesis or guideline pooled it, 55 citations in OpenAlex.
- Patients' Use of Social Media for Diabetes Self-Care: Systematic Review.Journal of medical Internet research · 2020Pooled it
- Understanding Membership in Alternative Health Social Media Groups and Its Association with COVID-19 and Influenza Vaccination: Web-Based Cross-Sectional Survey.JMIR formative research · 2024Article
- Internet-Based Recruitment and Retention of Young Adults With Type 1 Diabetes: Cross-Sectional Study.JMIR formative research · 2023Article
- Article
- 'It's like a never-ending diabetes youth camp': Co-designing a digital social network for young people with type 1 diabetes.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- ISPAD Clinical Practice Consensus Guidelines 2022: Diabetes in adolescence.Pediatric diabetes · 2022Review
- Sweet as Sugar-How Shared Social Identities Help Patients in Coping with Diabetes Mellitus.International journal of environmental research and public health · 2022Article
- "It Got Likes, But I Don't Think People Understood": A Qualitative Study of Adolescent Experiences Discussing Type 1 Diabetes on Social Media.Journal of diabetes science and technology · 2022Article
- Barriers and Facilitators to Diabetes Device Adoption for People with Type 1 Diabetes.Current diabetes reports · 2022Review
- Navigating Diabetes Online Communities in Clinical Practice.Journal of diabetes science and technology · 2022Review
- Article
- Mapping Individual Differences on the Internet: Case Study of the Type 1 Diabetes Community.JMIR diabetes · 2021Article
- Evaluation of Web-Based and In-Person Methods to Recruit Adults With Type 1 Diabetes for a Mobile Exercise Intervention: Prospective Observational Study.JMIR diabetes · 2021Article
- Diabetes self-management in online health communities: an information exchange perspective.BMC medical informatics and decision making · 2021Article
- Why #WeAreNotWaiting-Motivations and Self-Reported Outcomes Among Users of Open-source Automated Insulin Delivery Systems: Multinational Survey.Journal of medical Internet research · 2021Article
- Web-Based Peer Support Interventions for Adults Living With Chronic Conditions: Scoping Review.JMIR rehabilitation and assistive technologies · 2021Article
- Role for Social Media in Pediatric Liver Disease: Caregiver and Provider Perspectives.Pediatric gastroenterology, hepatology & nutrition · 2020Article
- Peer Mentoring in the Do-it-Yourself Artificial Pancreas System Community.Journal of diabetes science and technology · 2020Article
- Evolution of Do-It-Yourself Remote Monitoring Technology for Type 1 Diabetes.Journal of diabetes science and technology · 2020Article
- Evolution of Insulin Delivery Devices: From Syringes, Pens, and Pumps to DIY Artificial Pancreas.Diabetes therapy : research, treatment and education of diabetes and related disorders · 2020Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors at 1 institution in 1 country.
Funding
Abstract
backgroundOur objectives were to describe individuals' motivations for participation in an online social media community and to assess their level of trust in medical information provided by medical professionals and community members.
methodsA purposive survey was delivered to participants recruited through posts on the CGM in the Cloud group, Twitter, and blogs. Individuals were asked a series of demographic and social media use questions.
resultsA total of 1268 members of the CGM in the Cloud community responded to the survey. The majority were non-Hispanic White (92.1%) and caregivers of an individual with diabetes (80.9%). Mean age was 41 years old, and 74.8% were female. Primary goals of the Facebook group were to learn more about Nightscout technology and to receive technological assistance. Individuals provided assistance to the community through spreading awareness, technical assistance, support, and donation. Respondents put a high level of trust in their peers versus health professionals in many health situations with nearly 40% of individuals reported to be helped by following advice found in the Facebook group, and 99% reported no harm.
conclusionsOur findings suggest that patients with diabetes and their caregivers use social media for many health-related purposes including medical recommendations and technical support for medical devices and systems as well as emotional support.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.