ReviewThe patient2018
Experience-Based Values: A Framework for Classifying Different Types of Experience in Health Valuation Research.
Review in The patient, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Whom should we ask? A systematic literature review of the arguments regarding the most accurate source of information for valuation of health states.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Pooled it
- Comparison of Caregiver and General Population Preferences for Dependency-Related Health States.Applied health economics and health policy · 2025Article
- Experience-based health state valuation using the EQ VAS: a register-based study of the EQ-5D-3L among nine patient groups in Sweden.Health and quality of life outcomes · 2023Article
- Hypothetical versus experienced health state valuation: a qualitative study of adult general public views and preferences.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- 'Like holding the axe on who should live or not': adolescents' and adults' perceptions of valuing children's health states using a standardised valuation protocol for the EQ-5D-Y-3L.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
- Concordance among Swedish, German, Danish, and UK EQ-5D-3L Value Sets: Analyses of Patient-Reported Outcomes in the Swedish Hip Arthroplasty Register.Journal of clinical medicine · 2021Article
- Comparison of Adult and Adolescent Preferences Toward EQ-5D-Y-3L Health States.Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research · 2021Article
- Variations in Patients' Overall Assessment of Their Health Across and Within Disease Groups Using the EQ-5D Questionnaire: Protocol for a Longitudinal Study in the Swedish National Quality Registers.JMIR research protocols · 2021Article
- Valuing EQ-5D-Y-3L Health States Using a Discrete Choice Experiment: Do Adult and Adolescent Preferences Differ?Medical decision making : an international journal of the Society for Medical Decision Making · 2021Article
- Reporting and valuing one's own health: a think aloud study using EQ-5D-5L, EQ VAS and a time trade-off question among patients with a chronic condition.Health and quality of life outcomes · 2020Article
- An exploration of methods for obtaining 0 = dead anchors for latent scale EQ-5D-Y values.The European journal of health economics : HEPAC : health economics in prevention and care · 2020Article
- Experience-Based Swedish TTO and VAS Value Sets for EQ-5D-5L Health States.PharmacoEconomics · 2020Article
- Predictive ability of the American Society of Anaesthesiologists physical status classification system on health-related quality of life of patients after total hip replacement: comparisons across eight EQ-5D-3L value sets.BMC musculoskeletal disorders · 2020Article
- Article
- Happy with Your Capabilities? Valuing ICECAP-O and ICECAP-A States Based on Experienced Utility Using Subjective Well-Being Data.Medical decision making : an international journal of the Society for Medical Decision Making · 2020Article
- Influence of elicitation procedure and phrasing on health state valuations in experience-based time trade-off tasks among diabetes patients in China.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Article
- A note on the relationship between age and health-related quality of life assessment.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
Whether health values should be elicited from the perspective of patients or the general public is still an open debate. The overall aim of this paper is to increase knowledge on the role of experience in health preference-based valuation research. The objectives of this paper are threefold. First, we elaborate the idea of experience-based (EB) values under the informed value or knowledge viewpoint. We think the whole scope of knowledge about the health states involved in valuation exercises is not fully integrated in the previous literature. For instance, personal knowledge based on past experiences, contemplating the health state as a likely future condition, knowing someone who is currently experiencing the state, or just receiving detailed information about the health states; all these situations capture different nuances of health-related experience which are not explicitly referred to in valuation tasks. Second, we propose a framework where the extended factor of experience is detached from other factors interwoven into the valuation exercise. Third, we examine how experience is tackled in different value sets (EB or non-EB) identified via a literature review. We identified the following elements (and items) in a value set: health state (without description, described using a multi-attribute instrument, described using other method), reference person (the respondent; other person, similar/known/hypothetical), time frame (past, present, future), raters (public, representative/convenience; vested interest, patients/other) and experience (personal experience, past/present/future; vicarious experience, affective/non-affective; no experience). Forty-nine valuation exercises were extracted from 22 reviewed papers and classified following our suggested set of elements and items. The results show that the role of experience reported in health valuation-related papers is frequently disregarded or, at most, minimised to the item of personal experience (present)-linked to self-reported health.
Indexed as
Identifiers
29305706What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.