Evidence map›Paper›PMID 29304784›Full record

ArticleBMC medical ethics2018

Ethical aspects of diagnosis and interventions for children with fetal alcohol Spectrum disorder (FASD) and their families.

Gert Helgesson, Göran Bertilsson, Helena Domeij, Gunilla Fahlström, Emelie Heintz, Anders Hjern, Christina Nehlin Gordh, Viviann Nordin, Jenny Rangmar, Ann-Margret Rydell and 2 more

Open access · goldAbstract read
In one paragraph

Article in BMC medical ethics, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
8.3field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 36 citations in OpenAlex.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 4 institutions in 1 country.

Gert HelgessonStockholm Centre for Healthcare Ethics (CHE), Department of Learning, Informatics, Management and Ethics, Karolinska Institutet, Stockholm, Sweden. gert.helgesson@ki.se.ORCID 0000-0002-0075-0165
Göran BertilssonSwedish Agency for Health Technology Assessment and Assessment of Social Services (SBU), Stockholm, Sweden.
Helena DomeijSwedish Agency for Health Technology Assessment and Assessment of Social Services (SBU), Stockholm, Sweden.
Gunilla FahlströmSwedish Agency for Health Technology Assessment and Assessment of Social Services (SBU), Stockholm, Sweden.
Emelie HeintzSwedish Agency for Health Technology Assessment and Assessment of Social Services (SBU), Stockholm, Sweden.
Anders HjernClinical Epidemiology, Department of Medicine, Karolinska Institutet and Center for Health Equity Studies, Stockholm, Sweden.
Christina Nehlin GordhDepartment of Neuroscience, Psychiatry, Uppsala University, Uppsala, Sweden.
Viviann NordinCenter of Neurodevelopmental Disorders, Karolinska Institutet (KIND), Stockholm, Sweden.
Jenny RangmarDepartment of Psychology, University of Gothenburg, Gothenburg, Sweden.
Ann-Margret RydellDepartment of Psychology, Uppsala University, Uppsala, Sweden.
Viveka Sundelin WahlstenDepartment of Neuroscience, Child and Adolescent Psychiatry, Uppsala University, Uppsala, Sweden.
Monica HultcrantzSwedish Agency for Health Technology Assessment and Assessment of Social Services (SBU), Stockholm, Sweden.
Karolinska Institutet · SESBU - Swedish Agency for Health Technology Assessment and Assessment of Social Services · SEUppsala University · SEUniversity of Gothenburg · SE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundFetal alcohol spectrum disorders (FASD) is an umbrella term covering several conditions for which alcohol consumption during pregnancy is taken to play a causal role. The benefit of individuals being identified with a condition within FASD remains controversial. The objective of the present study was to identify ethical aspects and consequences of diagnostics, interventions, and family support in relation to FASD.

methodsEthical aspects relating to diagnostics, interventions, and family support regarding FASD were compiled and discussed, drawing on a series of discussions with experts in the field, published literature, and medical ethicists.

resultsSeveral advantages and disadvantages in regards of obtaining a diagnosis or description of the condition were identified. For instance, it provides an explanation and potential preparedness for not yet encountered difficulties, which may play an essential role in acquiring much needed help and support from health care, school, and the social services. There are no interventions specifically evaluated for FASD conditions, but training programs and family support for conditions with symptoms overlapping with FASD, e.g. ADHD, autism, and intellectual disability, are likely to be relevant. Stigmatization, blame, and guilt are potential downsides. There might also be unfortunate prioritization if individuals with equal needs are treated differently depending on whether or not they meet the criteria for a specific condition.

conclusionsThe value for the concerned individuals of obtaining a FASD-related description of their condition - for instance, in terms of wellbeing - is not established. Nor is it established that allocating resources based on whether individuals fulfil FASD-related criteria is justified, compared to allocations directed to the most prominent specific needs.

Indexed as

Ethics, MedicalFetal Alcohol Spectrum DisordersAdolescentChildChild, PreschoolDelivery of Health CareFamilyFemaleHumansInfantMalePregnancyAlcohol consumptionAlcohol expositionARBDARNDDiagnosticsEthicsFamily supportFasFASDpFAS

Identifiers

PMID29304784
PMCPMC5755211
OpenAlexW2781671648

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.