ArticleThe journals of gerontology. Series B, Psychological sciences and social sciences2020
Primary Caregivers in a Network Context.
Article in The journals of gerontology. Series B, Psychological sciences and social sciences, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
25 citing papers in PubMed, 33 citations in OpenAlex.
- Evolution of shared care networks by race and ethnicity: findings from the National Health and Aging Trends Study.The journals of gerontology. Series B, Psychological sciences and social sciences · 2025Article
- Older adults' care networks and the pathways to unmet needs.Innovation in aging · 2025Article
- Characterizing complex care relationships in Canada using the Canadian Longitudinal Study on Aging (CLSA).BMC geriatrics · 2025Article
- "Just give it to us straight!": a qualitative analysis of midwestern rural lung cancer survivors and caregivers about survivorship care experiences.Journal of cancer survivorship : research and practice · 2025Article
- Young Adult Caregivers for Older Family Members: Setting a New Research Agenda.Innovation in aging · 2025Review
- Sharing in Caring: Family Caregiving Task-Sharing Patterns for Older Adults in Singapore.The journals of gerontology. Series B, Psychological sciences and social sciences · 2024Article
- Benefit-finding profiles and comparison of caregiving ability among informal caregivers of patients with lung cancer: A latent profile analysis.Asia-Pacific journal of oncology nursing · 2024Article
- Perceived loss of support to community caregivers during the COVID-19 pandemic in the United States.Journal of community psychology · 2024Article
- Becoming a Rare Disease Parent: An Interpretative Phenomenological Analysis of Parent-Caregivers' Postpartum Experiences.Qualitative health research · 2024Article
- Examining Care Network Characteristics in Older Adults' Relocation to Residential Care Settings.Innovation in aging · 2024Article
- Shared Responsibility and Network Collaboration in Caregiving.Social networks · 2023Article
- Shared Care Networks Assisting Older Adults: New Insights From the National Health and Aging Trends Study.The Gerontologist · 2023Article
- Interconnected social convoys: Understanding health and well-being through linked personal networks.Advances in life course research · 2023Article
- Conceptualizing and Operationalizing Collaboration Among Multiple Caregivers of Older Adults.The journals of gerontology. Series B, Psychological sciences and social sciences · 2023Article
- Informal Caregiving Networks of Older Adults With Dementia Superimposed on Multimorbidity: A Social Network Analysis Study.Innovation in aging · 2023Article
- Links of we-talk to caregiver social network systems and health.Journal of family psychology : JFP : journal of the Division of Family Psychology of the American Psychological Association (Division 43) · 2022Article
- Article
- "It made me feel like I wasn't alone in the darkness": exploring dementia care network communication and coordination through a digital health platform.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Extended Family Caregivers for Persons Living With Dementia.Journal of family nursing · 2022Article
- A human factors and ergonomics approach to conceptualizing care work among caregivers of people with dementia.Applied ergonomics · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 2 institutions in 1 country.
Funding
Abstract
objectivesCaregiving to individuals affected by Alzheimer's disease and related dementia (ADRD) is a family-systems process where tasks are distributed between multiple caregivers in a network. We evaluate the extent to which multiple network members nominate one another as filling primary caregiver (PCG) roles and factors associated with nomination.
methodData come from the Caregiving Roles and Expectations Networks project, which aimed to characterize the caregiving networks of families affected by ADRD. All persons affected by ADRD were either full-time residents in residential care facilities or community-dwelling adult day-care participants. Generalized Poisson regression was used to model the count of incoming PCG nominations of each network member.
resultsOn average, there were multiple network members identified as PCGs across different network contexts. Network members who were perceived to perform essential caregiving tasks, such as making decisions on behalf of and spending time with the care recipient, received more primary caregiving nominations from their network peers, adjusting for personal attributes, and the context of care. DISCUSSION: Having multiple PCGs in a network may result in lack of consensus in who fills those roles, potentially putting families at risk for interpersonal conflicts. Future work aimed at intervention development should fully assess the social contexts surrounding caregiving processes in order to better understand how network composition might impact outcomes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.