Trial reportJournal of pain and symptom management2018
A Novel Screening Method to Identify Late-Stage Dementia Patients for Palliative Care Research and Practice.
Trial report in Journal of pain and symptom management, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06565169 (Improving Primary Care Clinician's Advance Care Planning Alzheimer's Disease and Related Dementias), which is not on this map. Cited by 16 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Improving Primary Care Clinician's Advance Care Planning Alzheimer's Disease and Related Dementias
Who cites it
16 citing papers in PubMed, 2 syntheses or guidelines pooled it, 29 citations in OpenAlex.
- Utilization of EHRs for clinical trials: a systematic review.BMC medical research methodology · 2024Pooled it
- Referral criteria to specialist palliative care for patients with dementia: A systematic review.Journal of the American Geriatrics Society · 2021Pooled it
- Triggered Palliative Care for Late-Stage Dementia: A Pilot Randomized Trial.Journal of pain and symptom management · 2019Trial
- Stage of Disease Among Hospitalized Persons Living With Dementia: A Multisite Study.Journal of the American Medical Directors Association · 2026Article
- A retrieval-augmented generation large language model framework for accurate dementia identification from electronic health records.medRxiv : the preprint server for health sciences · 2026Article
- Resigned but Resilient: Caregiver Perceptions of Role Ambiguity and Quality of Care During Hospital-to-Home Transitions of Older Latinos Living With Dementia.Journal of aging and health · 2025Article
- Care Partner Perspectives on the Use of a Patient Portal Intervention to Promote Care Partner Identification in Dementia Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- Challenges and solutions of conducting dementia clinical trials: A palliative care at home pilot for persons with dementia.Journal of the American Geriatrics Society · 2024Article
- Performance of an embedded algorithm to identify people with dementia in a clinical trial.Journal of the American Geriatrics Society · 2023Article
- Article
- Dementia and electronic health record phenotypes: a scoping review of available phenotypes and opportunities for future research.Journal of the American Medical Informatics Association : JAMIA · 2023Article
- Characteristics of elderspeak communication in hospital dementia care: Findings from The Nurse Talk observational study.International journal of nursing studies · 2022Observational
- Triggers for Referral to Specialized Palliative Care in Advanced Neurologic and Neurosurgical Conditions: A Systematic Review.Neurology. Clinical practice · 2022Article
- Electronic Medical Record-Based Case Phenotyping for the Charlson Conditions: Scoping Review.JMIR medical informatics · 2021Article
- Lay Caregivers' Experiences With Caring for Persons With Dementia: A Phenomenological Study.Journal of gerontological nursing · 2020Article
- Electronic Health Record Phenotypes for Identifying Patients with Late-Stage Disease: a Method for Research and Clinical Application.Journal of general internal medicine · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 1 institution in 1 country.
Funding
Abstract
contextInvestigators need novel methods for timely identification of patients with serious illness to test or implement new palliative care models.
objectivesThe study's aim was to develop an electronic health record (EHR) phenotype to identify patients with late-stage dementia for a clinical trial of palliative care consultation.
methodsWe developed a computerized method to identify patients with dementia on hospital admission. Within a data warehouse derived from the hospital's EHR, we used search terms of age, admission date, and ICD-9 and ICD-10 diagnosis codes to create an EHR dementia phenotype, followed by brief medical record review to confirm late-stage dementia. We calculated positive predictive value, false discovery rate, and false negative rate of this novel screening method.
resultsThe EHR phenotype screening method had a positive predictive value of 76.3% for dementia patients and 24.5% for late-stage dementia patients; a false discovery rate of 23.7% for dementia patients and 75.5% for late-stage dementia patients compared to physician assessment. The sensitivity of this screening method was 59.7% to identify hospitalized patients with dementia. Daily screening-including confirmatory chart reviews-averaged 20 minutes and was more feasible, efficient, and more complete than manual screening.
conclusionA novel method using an EHR phenotype plus brief medical record review is effective to identify hospitalized patients with late-stage dementia. In health care systems with similar clinical data warehouses, this method may be applied to serious illness populations to improve enrollment in clinical trials of palliative care or to facilitate access to palliative care services.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.