ReviewJournal of palliative medicine2018
The Impact of Measuring Patient-Reported Outcome Measures on Quality of and Access to Palliative Care.
Review in Journal of palliative medicine, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 40 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
40 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Quality indicators for palliative care for older people: An umbrella review.Palliative medicine · 2026Pooled it
- Implementing patient-centred outcome measures in palliative care clinical practice. An updated systematic review of facilitators and barriers.BMC palliative care · 2026Pooled it
- Quality indicators for Palliative Day Services: A modified Delphi study.Palliative medicine · 2019Pooled it
- Article
- Healthcare professionals' experiences in using a patient-reported outcome tool (PRO-Pall) to identify symptoms and problems in palliative care: A mixed-methods study.Palliative & supportive care · 2025Observational
- Process evaluation of a person-centred outcome measures-based quality improvement program in a hospital-based palliative care in mainland China.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- A Review on the Management of Symptoms in Patients with Incurable Cancer.Current oncology (Toronto, Ont.) · 2025Review
- What gets measured in palliative care? A review and synthesis of routine data collection in 16 countries.Health policy OPEN · 2025Review
- Assessment and monitoring by Integrated Palliative care Outcome Scale: an observational study on cancer patients at home.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Observational
- The Support Needs Approach for Patients (SNAP): content validity and response processes from the perspective of patients and nurses in Swedish specialised palliative home care.BMC palliative care · 2025Article
- Implementation of the e-IPOS in Home Palliative Cancer Care: A Quasiexperimental Pilot Study.The American journal of hospice & palliative care · 2025Article
- Did the Palliative Care Outcomes Collaboration (PCOC) program lead to improved end-of-life care quality and reduced non-beneficial treatments?Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Implementation Strategies for Quality Improvement in Palliative Care: A Scoping Review.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Co-design of the EMBED-Care Framework as an intervention to enhance shared decision-making for people affected by dementia and practitioners, comprising holistic assessment, linked with clinical decision support tools: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Understanding the extent to which PROMs and PREMs used with older people with severe frailty capture their multidimensional needs: A scoping review.Palliative medicine · 2024Article
- Using normalization process theory to evaluate the use of patient-centred outcome measures in specialist palliative home care-a qualitative interview study.BMC palliative care · 2024Article
- Development of a child and family centred outcome measure for children and young people with life-limiting and life-threatening conditions: progress to date on the Children's Palliative Care Outcome Scale (C-POS:UK).Palliative care and social practice · 2024Article
- Routine patient assessment and the use of patient-reported outcomes in specialized palliative care in Japan.Journal of patient-reported outcomes · 2023Article
- Feasibility, use and benefits of patient-reported outcome measures in palliative care units: a multicentre observational study.BMC palliative care · 2023Observational
- State-wide implementation of patient-reported outcome measures (PROMs) in specialized outpatient palliative care teams (ELSAH): A mixed-methods evaluation and implications for their sustainable use.BMC palliative care · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundMeasuring performance for palliative care is complex as care is delivered in many sites, over time and jointly to the patient and family. Measures of structural processes do not necessarily capture aspects that are important to patients and families nor reflect holistic multidisciplinary outcomes of care. This article focuses on the question as to whether measurement of patient-reported outcome measures improves the outcomes of quality and access to palliative care.
objectivesTo review the international evidence that measurement of indicators of desired outcomes improves the quality of and access to palliative care, in order to apply them to the Canadian context.
designRapid review.
settingCanadian context.
findingsThis review identified six systematic reviews and forty-seven studies that describe largely national efforts to arrive at a consensus as to what needs to be measured to assess quality of palliative care. Patient-reported outcome measures (PROMs) are becoming more prevalent, with emerging evidence to suggest that their measurement improves outcomes that are important to patients. Several Canadian initiatives are in place, including the Canadian Partnership Against Cancer's efforts, in conjunction with other partners, to develop common quality measures. Results from Australia's Palliative Care Outcomes Collaborative demonstrate that patient-centered improvements in palliative care can be measured by using patient-reported outcomes derived at the point of care and delivered nationally.
conclusionsMeasurement of quality palliative and end-of-life care is very complex. It requires that both administrative data and PROMs be assessed to reflect outcomes that are important to patients and families. Australia's national initiative is a promising exemplar for continued work in this area.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.