ArticleFamilies, systems & health : the journal of collaborative family healthcare2017
Family members' experiences supporting adults with chronic illness: A national survey.
Article in Families, systems & health : the journal of collaborative family healthcare, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 40 papers, 1 of them a synthesis that pooled it.
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Who cites it
40 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Prevention and Management of Diabetes-Related Foot Ulcers through Informal Caregiver Involvement: A Systematic Review.Journal of diabetes research · 2022Pooled it
- Effectiveness of a Patient-Family Carer Partnership Intervention on Blood Pressure Control for People with Hypertension in Rural Communities: A Randomised Controlled Trial.Journal of nursing management · 2024Trial
- Effectiveness of a Health Coaching Intervention for Patient-Family Dyads to Improve Outcomes Among Adults With Diabetes: A Randomized Clinical Trial.JAMA network open · 2022Trial
- Diabetes Distress Among Dyads of Patients and Their Health Supporters: Links With Functional Support, Metabolic Outcomes, and Cardiac Risk.Annals of behavioral medicine : a publication of the Society of Behavioral Medicine · 2021Trial
- Relationship between adult and family supporter health literacy levels and supporter roles in diabetes management.Families, systems & health : the journal of collaborative family healthcare · 2021Trial
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- Social and cultural determinants of traditional, complementary and integrative medicine (TCIM) use in primary care: the role of migration, health literacy, and religious orientation.BMC public health · 2026Article
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- Filial Piety and Tiwala: Diabetes Knowledge and Family Support Among Chinese and Filipino Americans.Journal of transcultural nursing : official journal of the Transcultural Nursing Society · 2026Article
- Navigating the Healthcare System With Chronic Illness: A Qualitative Study of Caregiver Experiences.Scandinavian journal of caring sciences · 2025Article
- Change in Stress Among Individuals with Chronic Health Conditions and Low Health Literacy Using a Tailored Communication App Promoting Self-Management.Behavioral sciences (Basel, Switzerland) · 2025Article
- Article
- A Pathway Analysis of Factors Affecting Quality of Life in Peritoneal Dialysis Patients: A Cross-Sectional Study Based on Individual and Family Self-Management Theory.Patient preference and adherence · 2025Article
- The relationship between family conflict resolution methods and depressive symptoms in patients with chronic diseases.PloS one · 2025Article
- Article
- Integrating literature and family insights: exploring the needs of families supporting adults with diabetes.Frontiers in public health · 2024Article
- Invisible no more: unpaid care giving in the shadow of covid-19.BMJ (Clinical research ed.) · 2023Article
- Adapting a Telephone-Based, Dyadic Self-management Program to Be Delivered Over the Web: Methodology and Usability Testing.JMIR formative research · 2023Article
- Life satisfaction and difficulties experienced by the family members of individuals with thalassemia.Nursing open · 2023Article
- Pili Pono Practice: A Qualitative Study on Reimagining Native Hawaiian Food Sovereignty through MALAMA Backyard Aquaponics.Journal of health disparities research and practice · 2023Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
introductionFamily and friends often help chronically ill adults manage their conditions. Information about specific ways supporters help with disease management, and their experiences with and concerns about helping are lacking. This study describes key roles and concerns of family members who support the health management of adults with chronic illness, and compares experiences of health supporters living in and outside of support recipients' homes.
methodsData were obtained from a national internet survey of 1,722 adults selected to represent the U.S. POPULATION: Detailed survey questions were completed by 703 respondents who reported providing regular disease-management help to at least one functionally-independent family member or friend with at least one of five chronic conditions (diabetes, heart failure, chronic lung disease, arthritis, depression).
resultsCurrent supporters assisted 834 chronically ill adults: 257 receiving in-home support and 577 receiving out-of-home support. Current supporters spent 2.1 hours/week on average helping their support recipient with health care, and 21.2% attended their recipient's health care appointments. Many recipients discussed crucial concerns about medication side effects (47.0%) and trouble paying for medications (32.0%) with supporters. However, 41.0% of supporters reported insufficient information about recipients' health conditions and regimen to be helpful. In-home supporters reported arguing more often with support recipients, but also received more information from recipients' health care providers than out-of-home supporters. DISCUSSION: Family and friends have significant potential to influence patients' chronic illness self-management. Programs to engage chronically ill patients' families to support self-management could provide information and skills targeting needs identified by supporters. (PsycINFO Database Record
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