SynthesisAmerican journal of Alzheimer's disease and other dementias2018
Underreporting of Gender and Race/Ethnicity Differences in NIH-Funded Dementia Caregiver Support Interventions.
Synthesis in American journal of Alzheimer's disease and other dementias, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
28 citing papers in PubMed.
- An App for Care Partners of Persons Living With Dementia (Aliviado Caregiving): Human-Centered Design Study.JMIR formative research · 2026Article
- Feasibility, acceptability, and pre- post-program outcome changes of the real-world implementation of an informal caregiver support program via text message.Journal of Alzheimer's disease : JAD · 2026Article
- Exploring the Cultural Adaptation of an Ongoing Evidence-Based Intervention for Chinese and Korean American Dementia Caregivers: Descriptive Study.JMIR formative research · 2026Article
- Development and validation of the Caregiver-reported Outcome Measure for Emergency care Transitions (COMET) tool.Alzheimer's & dementia. Behavior & socioeconomics of aging · 2026Article
- Remote Intervention to Support Caregivers of Latino People with Dementia: Feasibility Study.medRxiv : the preprint server for health sciences · 2025Article
- Reflecting upon Session 8 of the 2023 dementia care summit: Diversity beyond outreach, recruitment, and retention.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Is caregiver burden associated with sex and gender-related characteristics? A large-scale survey study among family caregivers of people with dementia.BMC geriatrics · 2025Article
- Rapid review: Ten ways to improve support for minoritised informal adult carers at local government policy level to redress inequality.Public health in practice (Oxford, England) · 2024Review
- Integrating health equity into a national infrastructure to support pragmatic trials in dementia care.Journal of the American Geriatrics Society · 2024Article
- Use of Caregiving Support Services Among Diverse Dementia Caregivers by Geographic Context.The Gerontologist · 2024Article
- A cultural approach to dementia - insights from US Latino and other minoritized groups.Nature reviews. Neurology · 2022Review
- A Text Messaging Intervention to Support Latinx Family Caregivers of Individuals With Dementia (CuidaTEXT): Development and Usability Study.JMIR aging · 2022Article
- CommunityRx: Optimizing a Community Resource Referral Intervention for Minority Dementia Caregivers.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2022Article
- Emergency department care transition barriers: A qualitative study of care partners of older adults with cognitive impairment.Alzheimer's & dementia (New York, N. Y.) · 2022Article
- Caring for a Relative with Dementia: Determinants and Gender Differences of Caregiver Burden in the Rural Setting.Brain sciences · 2021Article
- Impact of dementia: Health disparities, population trends, care interventions, and economic costs.Journal of the American Geriatrics Society · 2021Review
- Accentuate the Positive: The Association Between Informal and Formal Supports and Caregiving Gains.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2021Article
- Caregiver Response to an Online Dementia and Caregiver Wellness Education Platform.Journal of Alzheimer's disease reports · 2021Article
- Integration of Conversion Factors for the Development of an Inclusive eHealth Tool With Caregivers of Functionally Dependent Older Persons: Social Justice Design.JMIR human factors · 2020Article
- Dementia Caregiving Research: Expanding and Reframing the Lens of Diversity, Inclusivity, and Intersectionality.The Gerontologist · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
Women and racial/ethnic minority dementia caregivers have unique caregiving experiences and support needs. To ensure the identification of potentially important differences in outcomes within these groups, the amended National Institutes of Health (NIH) Policy on Inclusion of Women and Minorities mandates reporting by gender and race/ethnicity. The objective of this study was to determine the inclusion and reporting rates among NIH-funded dementia caregiver support interventions. A focused systematic literature review of studies published from 1994 to 2015 located 48 articles meeting inclusion criteria. The majority of studies included women and racial/ethnic minorities; however, 67% did not report results by gender or racial/ethnic group. Acknowledgment of underreporting was more common for race/ethnicity than gender. Our findings suggest limited NIH guideline compliance that may reflect a lack of awareness regarding potential gender disparities in caregiving roles. Ensuring NIH guideline compliance necessitates shared investments from researchers, editors, and reviewers to ensure group differences are systematically identified and reported.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.