ArticleCurrent oncology (Toronto, Ont.)2017
The views of patients with brain cancer about palliative care: a qualitative study.
Article in Current oncology (Toronto, Ont.), 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
14 citing papers in PubMed, 1 synthesis or guideline pooled it, 29 citations in OpenAlex.
- Early palliative interventions for improving outcomes in people with a primary malignant brain tumour and their carers.The Cochrane database of systematic reviews · 2022Pooled it
- Perceptions of Need for Palliative Care in Recently Hospitalized Patients With Systolic Heart Failure.Journal of pain and symptom management · 2021Trial
- Palliative care interventions and outcome in patients with glioblastoma - a retrospective, single-center study.BMC palliative care · 2026Article
- Palliative care referral across the disease trajectory in high-grade glioma.Journal of neuro-oncology · 2023Article
- Easing the Journey-an Updated Review of Palliative Care for the Patient with High-Grade Glioma.Current oncology reports · 2022Review
- Trends in inpatient palliative care use for primary brain malignancies.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Palliative Care Consultation for Hospitalized Patients with Primary and Secondary Brain Tumors at a Single Academic Center.Journal of palliative medicine · 2021Article
- Quality of online self-management resources for adults living with primary brain cancer, and their carers: a systematic environmental scan.BMC palliative care · 2021Article
- The Importance of Shared Decision-Making for Patients with Glioblastoma.Patient preference and adherence · 2021Article
- Stakeholder engagement in research on quality of life and palliative care for brain tumors: a qualitative analysis of #BTSM and #HPM tweet chats.Neuro-oncology practice · 2020Article
- Palliative Care in High-Grade Glioma: A Review.Brain sciences · 2020Review
- Evolving Definitions of Palliative Care: Upstream Migration or Confusion?Current treatment options in oncology · 2020Review
- "Small small interventions, big big roles"- a qualitative study of patient, care-giver and health-care worker experiences of a palliative care programme in Kerala, India.BMC palliative care · 2019Article
- Impact of Early Palliative Care on Newly Diagnosed Brain Tumour Patients.Indian journal of palliative careArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPalliative care, a specialty aimed at providing optimal care to patients with life-limiting and chronic conditions, has several benefits. Although palliative care is appropriate for neurosurgical conditions, including brain cancer, few studies have examined the views of brain cancer patients about palliative care. We aimed to explore the thoughts of brain cancer patients about palliative care, their opinions about early palliative care, and their preferred care setting.
methodsSemi-structured interviews and the qualitative research methodologies of grounded theory were used to explore perceptions of palliative care on the part of 39 brain cancer outpatients.
resultsSeven overarching actions emerged: ■Patients would prefer to receive palliative care in the home.■Increased time with caregivers and family are the main appeals of home care.■Patients express dissatisfaction with brief and superficial interactions with health care providers.■Patients believe that palliative care can contribute to their emotional well-being.■Patients are open to palliative care if they believe that it will not diminish optimism.■There is a preconceived idea that palliative care is directly linked to active dying, and that supposed link generates fear in some patients.■Patients prefer to be educated about palliative care as an option early in their illness, even if they are fearful of it.
conclusionsOverall, when educated about the true meaning of palliative care, most patients express interest in accessing palliative care services. Although the level of fear concerning palliative care varies in patients, most recognize the associated benefits.
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