ArticlePublic health reports (Washington, D.C. : 1974)
Collection of Data on Race, Ethnicity, Language, and Nativity by US Public Health Surveillance and Monitoring Systems: Gaps and Opportunities.
Article in Public health reports (Washington, D.C. : 1974). The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed.
- Data invisibility in United States national healthcare datasets: implications for immigrant health equity.Lancet regional health. Americas · 2026Review
- Statistical Accuracy of Administratively Recorded Race/Ethnicity in the Military Health System and Race/Ethnicity Ascertained via Questionnaire.Journal of racial and ethnic health disparities · 2026Article
- Nonrandom Missingness in Child Race and Ethnicity Records and the US Federal Data Standards: Pooled Analysis of Community-Based Child Health Studies.JMIR public health and surveillance · 2025Article
- Sudden Unexpected Infant Death Rates and Social Determinants of Health Among Hispanic Infants.JAMA network open · 2025Article
- Accuracy of Race and Ethnicity Data in the Pediatric Electronic Health Record: A Concordance and System Adequacy Study.Health equity · 2025Article
- Assessing the role of social determinants of health in health disparities: The need for data on work.American journal of industrial medicine · 2024Article
- Reporting of Race and Ethnicity in the Vaccine Safety Datalink, 2011-2022.American journal of preventive medicine · 2024Article
- Time Trends and Demographic Disparities inGastro hep advances · 2024Article
- Social Risk Screening and Response Equity: Assessment by Race, Ethnicity, and Language in Community Health Centers.American journal of preventive medicine · 2023Article
- Answering calls for rigorous health equity research: a cross-sectional study leveraging electronic health records for data disaggregation in Latinos.Family medicine and community health · 2023Article
- Stakeholders' Perspectives on the Feasibility of Adopting a Healthy Nail Salon Recognition Program in Philadelphia: A Qualitative Study.Annals of work exposures and health · 2023Article
- Using Rapid-Cycle Change to Improve COVID-19 Vaccination Strategy in Primary Care.International journal of environmental research and public health · 2023Article
- Perspectives of public health organizations partnering with refugee, immigrant, and migrant communities for comprehensive COVID-19 case investigation and contact tracing.Frontiers in public health · 2023Article
- Advocating for language equity: a community-public health partnership.Frontiers in public health · 2023Article
- Analyzing Patient-Provided Responses to Improve Collection of Health Equity Data Elements.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2023Article
- Latinx Race and Ethnicity Data Gaps: The HACER Campaign and a Call to Action.American journal of public health · 2022Article
- Influenza vaccination coverage among adults by nativity, race/ethnicity, citizenship, and language of the interview - United States, 2012-2013 through 2017-2018 influenza seasons.American journal of infection control · 2022Article
- Health Equity and a Paradigm Shift in Occupational Safety and Health.International journal of environmental research and public health · 2021Article
- Collection of Data on Sex, Sexual Orientation, and Gender Identity by U.S. Public Health Data and Monitoring Systems, 2015-2018.International journal of environmental research and public health · 2021Article
- Disparities in Incidence and Severity of Shigella Infections Among Children-Foodborne Diseases Active Surveillance Network (FoodNet), 2009-2018.Journal of the Pediatric Infectious Diseases Society · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveDespite increasing diversity in the US population, substantial gaps in collecting data on race, ethnicity, primary language, and nativity indicators persist in public health surveillance and monitoring systems. In addition, few systems provide questionnaires in foreign languages for inclusion of non-English speakers. We assessed (1) the extent of data collected on race, ethnicity, primary language, and nativity indicators (ie, place of birth, immigration status, and years in the United States) and (2) the use of data-collection instruments in non-English languages among Centers for Disease Control and Prevention (CDC)-supported public health surveillance and monitoring systems in the United States.
methodsWe identified CDC-supported surveillance and health monitoring systems in place from 2010 through 2013 by searching CDC websites and other federal websites. For each system, we assessed its website, documentation, and publications for evidence of the variables of interest and use of data-collection instruments in non-English languages. We requested missing information from CDC program officials, as needed.
resultsOf 125 data systems, 100 (80%) collected data on race and ethnicity, 2 more collected data on ethnicity but not race, 26 (21%) collected data on racial/ethnic subcategories, 40 (32%) collected data on place of birth, 21 (17%) collected data on years in the United States, 14 (11%) collected data on immigration status, 13 (10%) collected data on primary language, and 29 (23%) used non-English data-collection instruments. Population-based surveys and disease registries more often collected data on detailed variables than did case-based, administrative, and multiple-source systems.
conclusionsMore complete and accurate data on race, ethnicity, primary language, and nativity can improve the quality, representativeness, and usefulness of public health surveillance and monitoring systems to plan and evaluate targeted public health interventions to eliminate health disparities.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.