Evidence map›Paper›PMID 29258480›Full record

ArticleBMC palliative care2017

End of life care preferences among people of advanced age: LiLACS NZ.

Merryn Gott, Rosemary Frey, Janine Wiles, Anna Rolleston, Ruth Teh, Tess Moeke-Maxwell, Ngaire Kerse

Open access · goldAbstract read
In one paragraph

Article in BMC palliative care, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed, 1 pooled it
4.0field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 1 synthesis or guideline pooled it, 40 citations in OpenAlex.

  1. Pooled it
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  10. Observational
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  12. Gender and palliative care: a call to arms.Palliative care and social practice · 2020
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 1 institution in 1 country.

Merryn GottSchool of Nursing, Faculty of Medical and Health Sciences, University of Auckland, Auckland, New Zealand. m.gott@auckland.ac.nz.ORCID http://orcid.org/0000-0003-4399-962X
Rosemary FreySchool of Nursing, Faculty of Medical and Health Sciences, University of Auckland, Auckland, New Zealand.
Janine WilesSchool of Nursing, Faculty of Medical and Health Sciences, University of Auckland, Auckland, New Zealand.
Anna RollestonSchool of Nursing, Faculty of Medical and Health Sciences, University of Auckland, Auckland, New Zealand.
Ruth TehSchool of Nursing, Faculty of Medical and Health Sciences, University of Auckland, Auckland, New Zealand.
Tess Moeke-MaxwellSchool of Nursing, Faculty of Medical and Health Sciences, University of Auckland, Auckland, New Zealand.
Ngaire KerseSchool of Nursing, Faculty of Medical and Health Sciences, University of Auckland, Auckland, New Zealand.
University of Auckland · NZ

Funding

Health Research Council of New Zealand HRC 09/068B
6 · The paper itself

Abstract

backgroundUnderstanding end of life preferences amongst the oldest old is crucial to informing appropriate palliative and end of life care internationally. However, little has been reported in the academic literature about the end of life preferences of people in advanced age, particularly the preferences of indigenous older people, including New Zealand Māori.

methodsData on end of life preferences were gathered from 147 Māori (aged >80 years) and 291 non- Māori aged (>85 years), during three waves of Te Puawaitangi O Nga Tapuwae Kia Ora Tonu, Life and Living in Advanced Age (LiLACs NZ). An interviewer-led questionnaire using standardised tools and including Māori specific subsections was used.

resultsThe top priority for both Māori and non-Māori participants at end of life was 'not being a burden to my family'. Interestingly, a home death was not a high priority for either group. End of life preferences differed by gender, however these differences were culturally contingent. More female Māori participants wanted spiritual practices at end of life than male Māori participants. More male non-Māori participants wanted to be resuscitated than female non- Māori participants.

conclusionsThat a home death was not in the top three end of life priorities for our participants is not consistent with palliative care policy in most developed countries where place of death, and particularly home death, is a central concern. Conversely our participants' top concern - namely not being a burden - has received little research or policy attention. Our results also indicate a need to pay attention to diversity in end of life preferences amongst people of advanced age, as well as the socio-cultural context within which preferences are formulated.

Indexed as

Aged, 80 and overAgingChi-Square DistributionCohort StudiesFemaleHumansMaleNew ZealandPatient PreferencePopulation GroupsSurveys and QuestionnairesTerminal CareAdvanced ageCultureEnd of lifeEthnicityIndigenousMāoriOlder peoplePalliativePreferences

Identifiers

PMID29258480
PMCPMC5738169
OpenAlexW2775913725

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.