SynthesisBMJ open2017
The lived experience of chronic headache: a systematic review and synthesis of the qualitative literature.
Synthesis in BMJ open, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
36 citing papers in PubMed, 5 syntheses or guidelines pooled it, 71 citations in OpenAlex.
- Preventive drug treatments for adults with chronic migraine: a systematic review with economic modelling.Health technology assessment (Winchester, England) · 2024Pooled it
- Partners' Experiences of Chronic Pain: A Qualitative Evidence Synthesis.Journal of clinical psychology in medical settings · 2024Pooled it
- Adverse Childhood Experiences and Primary Headache Disorders: A Systematic Review, Meta-analysis, and Application of a Biological Theory.Neurology · 2023Pooled it
- Living with migraine: A meta-synthesis of qualitative studies.Frontiers in psychology · 2023Pooled it
- The association between headache and low back pain: a systematic review.The journal of headache and pain · 2019Pooled it
- Does pain self-efficacy predict, moderate or mediate outcomes in people with chronic headache; an exploratory analysis of the CHESS trial.The journal of headache and pain · 2024Trial
- Chronic Headache Education and Self-Management Study (CHESS): a process evaluation.BMC neurology · 2023Trial
- Using natural language processing to automatically classify written self-reported narratives by patients with migraine or cluster headache.The journal of headache and pain · 2022Trial
- Development of an education and self-management intervention for chronic headache - CHESS trial (Chronic Headache Education and Self-management Study).The journal of headache and pain · 2019Trial
- Article
- Adapting to life with chronic migraine: a qualitative study of lived experiences among multi-ethnic Asian patients.Frontiers in pain research (Lausanne, Switzerland) · 2026Article
- Neurocognitive Performance and Executive Functions Do Not Influence Conditioned Pain Modulation in Women with Migraine.Life (Basel, Switzerland) · 2025Article
- When Migraine Meets People: A Qualitative Study on the Negative and Positive Influences of Episodic Migraine on Interpersonal Relationships.International journal of behavioral medicine · 2025Article
- The burden of migraine and tension-type headache in Asia from 1990 to 2021.The journal of headache and pain · 2025Article
- Recognizing, Accepting, and Belonging: Patient Learning and Experiences in a Structured Headache Education Program.Journal of multidisciplinary healthcare · 2025Article
- The Burden of Analgesics Overprescription for Chronic Headache: Impacts on Patients, Healthcare System and Countries.Journal of multidisciplinary healthcare · 2025Review
- "It's just part of who I am…" Living with chronic headache: voices from the CHESS trial, a qualitative study.BMC neurology · 2024Article
- The impacts of migraine on functioning: Results from two qualitative studies of people living with migraine.Headache · 2024Article
- Article
- Understanding the lived experience of chronic pain: A systematic review and synthesis of qualitative evidence syntheses.British journal of pain · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 2 institutions in 1 country.
Funding
Abstract
objectiveTo systematically review the qualitative literature of the lived experience of people with a chronic headache disorder.
backgroundChronic headaches affect 3%-4% of the population. The most common chronic headache disorders are chronic migraine, chronic tension-type headache and medication overuse headache. We present a systematic review and meta-ethnographic synthesis of the lived experience of people with chronic headache.
methodsWe searched seven electronic databases, hand-searched nine journals and used a modified Critical Appraisal Skills Programme checklist to appraise study quality. Following thematic analysis we synthesised the data using a meta-ethnographic approach.
resultsWe identified 3586 unique citations; full texts were examined for 86 studies and 4 were included in the review. Included studies differed in their foci: exploring, patient-centred outcomes, chronic headache as a socially invisible disease, psychological processes mediating impaired quality of life, and the process of medication overuse. Initial thematic analysis and subsequent synthesis gave three overarching themes: 'headache as a driver of behaviour' (directly and indirectly), 'the spectre of headache' and 'strained relationships'.
conclusionThis meta-synthesis of published qualitative evidence demonstrates that chronic headaches have a profound effect on people's lives, showing similarities with other pain conditions. There were insufficient data to explore the similarities and differences between different chronic headache disorders.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.