Observational studyJournal of pain and symptom management2018
Advance Care Planning in Community-Dwelling Patients With Dementia.
Observational study in Journal of pain and symptom management, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
25 citing papers in PubMed, 50 citations in OpenAlex.
- The ICU Care Plan: Human-Centered Design of a Tool to Support Time-Limited Trials for Older Adults With Critical Illness.Journal of the American Geriatrics Society · 2025Article
- Needs of key stakeholders to make advance care plans and advance directives for people with dementia: a scoping review.BMC geriatrics · 2025Article
- "You like to be in control of your own destiny to a degree, don't you?": conscientious autonomy and planning for future care with dementia.BMC palliative care · 2025Article
- Medical decision-making experiences of persons with dementia and their carepartners: a qualitative study.BMC palliative care · 2025Article
- The clock-drawing test: reading temporalities of dementia from clinical chart notes.The journal of the Royal Anthropological Institute · 2025Article
- Characterizing the Use of Time-Limited Trials in Patients With Acute Respiratory Failure: A Prospective, Single-Center Observational Study.Critical care explorations · 2024Observational
- Review
- Association between physicians' geriatric training and patterns of end-of-life care delivered to persons with dementia.Journal of the American Geriatrics Society · 2023Article
- Shared decision-making in persons living with dementia: A scoping review.Dementia (London, England) · 2023Article
- US clinicians' perspectives on advance care planning for persons with dementia: A qualitative study.Journal of the American Geriatrics Society · 2023Article
- Dementia Care in the Last Year of Life: Experiences in a Community Practice and in Skilled Nursing Facilities.Journal of palliative care · 2023Article
- Promoting Advance Care Planning for Persons with Dementia: Study Protocol for the LEAD (Life-Planning in Early Alzheimer's and Other Dementias) Clinical Trial.OBM integrative and complimentary medicine · 2023Article
- Relating to the end of life through advance care planning: Expectations and experiences of people with dementia and their family caregivers.Dementia (London, England) · 2022Article
- Advance Directive and POLST Documentation in Decedents With Dementia at a Memory Care Center: The Importance of Early Advance Care Planning.Neurology. Clinical practice · 2022Article
- Predicting Hospice Transitions in Dementia Caregiving Dyads: An Exploratory Machine Learning Approach.Innovation in aging · 2022Article
- How Do We Talk With People Living With Dementia About Future Care: A Scoping Review.Frontiers in psychology · 2022Article
- "People are more afraid of a dementia diagnosis than of death": The challenges of supporting advance care planning for persons with dementia in community settings.Frontiers in dementia · 2022Article
- The Association of Advance Care Planning Documentation and End-of-Life Healthcare Use Among Patients With Multimorbidity.The American journal of hospice & palliative care · 2021Article
- Exploring Differential Perceptions and Barriers to Advance Care Planning in Dementia among Asian Patient-Caregiver Dyads-A Mixed-Methods Study.International journal of environmental research and public health · 2021Article
- Advance care planning participation by people with dementia: a cross-sectional survey and medical record audit.BMJ supportive & palliative care · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 5 institutions in 1 country.
Funding
Abstract
contextLittle is known about advance care planning (ACP) among community-dwelling patients with dementia.
objectivesTo describe aspects of ACP among patients with dementia and examine the association between ACP and health care proxy (HCP) acceptance of patients' illness.
methodsCross-sectional observational survey of 62 HCPs of patients with dementia (N = 14 mild, N = 48 moderate/severe), from seven outpatient geriatric and memory disorder clinics in Boston. Aspects of ACP included HCP's report of patients' preferences for level of future care, communication with HCP and physician regarding care preferences, and proxy preparedness for shared decision making. The association between ACP and HCP acceptance with patients' illness was examined using the Peace, Equanimity, and Acceptance subscale of the Cancer Experience Scale.
resultsEleven percent of proxies believed that the patient would want life-prolonging treatment, 31% a time-limited trial of curative treatment, and 47% comfort-focused care. Thirty-one percent reported that the patient had communicated with their physician regarding preferences for care, and 77% had communicated with the HCP. Forty-four percent of HCPs wanted more discussion with the patient regarding care preferences. The HCP having discussed care preferences with the patient was associated with greater acceptance of the patient's illness (P = 0.004).
conclusionOur findings support need for greater ACP discussions between patients and proxies. Discussions regarding goals of care are likely to benefit patients through delivery of care congruent with their wishes and HCPs in terms of greater acceptance of patients' illness.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.