ArticleBMJ open2017
Which outcomes are important to patients and families who have experienced paediatric acute respiratory illness? Findings from a mixed methods sequential exploratory study.
Article in BMJ open, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 2 of them syntheses that pooled it.
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Who cites it
12 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Systematic literature review of the signs and symptoms of respiratory syncytial virus.Influenza and other respiratory viruses · 2023Pooled it
- Assessing the engagement of children and families in selecting patient-reported outcomes (PROs) and developing their measures: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Pooled it
- Trial
- The Feasibility of C-Reactive Protein Point-of-Care Testing to Reduce Overuse of Antibiotics in Children with Acute Respiratory Tract Infections in Rural Kyrgyzstan: A Pilot Study.Pediatric health, medicine and therapeutics · 2024Article
- Association of lifestyle behaviors with health-related quality of life among patients with hematologic diseases.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Alzheimer Caregiving Problems According to ADLs: Evidence from Facebook Support Groups.International journal of environmental research and public health · 2022Article
- Using Social Media to Engage Knowledge Users in Health Research Priority Setting: Scoping Review.Journal of medical Internet research · 2022Article
- Same knee, different goals: patients and surgeons have different priorities related to ACL reconstruction.Knee surgery, sports traumatology, arthroscopy : official journal of the ESSKA · 2021Article
- Caregivers' Experience of Caring for a Family Member with Alzheimer's Disease: A Content Analysis of Longitudinal Social Media Communication.International journal of environmental research and public health · 2020Article
- Defining Symptom Concepts in Chronic Subjective Tinnitus: Web-Based Discussion Forum Study.Interactive journal of medical research · 2020Article
- Readability assessment of package leaflets of biosimilars.BMJ open · 2019Article
- Non-psychiatric hospitalization length-of-stay for patients with psychotic disorders: A mixed methods study.General hospital psychiatryArticle
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo identify the outcome priorities of parents of children who had experienced an acute respiratory infection (ARI).
designThis was a two-phase, mixed methods study with a sequential exploratory design. We used a cross-sectional quantitative web-based survey to elicit parents' priorities for paediatric ARI. We then used a discussion moderated via Facebook to elucidate richer descriptions of parents' priorities.
settingSurvey and discussion data were collected via the internet.
participants110 parents (90% women, median age 35 years, 92.7% urban dwelling, 94.5% with a postsecondary education) with a child who had experienced an ARI responded to the survey. Four parents participated in the Facebook discussion. PRIMARY AND SECONDARY OUTCOME MEASURES: The primary outcome was parents' rankings of outcomes related to paediatric ARI. The secondary outcomes were the alignment of parent-reported important outcomes with those commonly reported in Cochrane systematic reviews (SRs).
resultsCommonly reported ARIs included croup (44.5%), wheezing (43.6%) and influenza (38.2%). Parents ranked major complications, illness symptoms and length of stay as the most important outcome categories. With respect to specific outcomes, severe complications, major side effects, doctor's assessment, relapse, oxygen supplementation and results from laboratory measures were reported as most important (75th-99th percentile). Taking time off work, mild complications, interference with daily activities, treatment costs, absenteeism, follow-up visits and other costs were deemed minimally important (<25th percentile). In 35 Cochrane SRs, 29 unique outcomes were reported. Although participants' priorities sometimes aligned with outcomes frequently reported in the literature, this was not always true. Additional priorities from the survey (n=50) and Facebook discussions (n=4) included healthcare access, interacting with healthcare providers, education, impact on daily activities and child well-being.
conclusionsIn the context of paediatric ARI, parents' priorities did not always align with commonly researched outcomes. Appealing and efficient strategies to engage patients and parents in research should be developed.
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