ArticlePublic understanding of science (Bristol, England)2018
Genomics England's implementation of its public engagement strategy: Blurred boundaries between engagement for the United Kingdom's 100,000 Genomes project and the need for public support.
Article in Public understanding of science (Bristol, England), 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 1 of them a synthesis that pooled it.
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Who cites it
24 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Delivering genomic medicine in the United Kingdom National Health Service: a systematic review and narrative synthesis.Genetics in medicine : official journal of the American College of Medical Genetics · 2019Pooled it
- Public and patient involvement: exploring public partnership in pathogen whole-genome sequencing research and its data visualisation.Microbial genomics · 2026Article
- Pathway Analysis and Genetic Markers in Parkinson's Disease: Insights into Subtype-Specific Mechanisms.Molecular neurobiology · 2025Article
- A citizen-centred approach to public engagement on the ethical, legal and societal issues of health technologies.Public understanding of science (Bristol, England) · 2025Article
- The current landscape of personalised preventive approaches for non-communicable diseases: A scoping review.PloS one · 2025Article
- Science and Society: Pathways to Equitable Access and Delivery of Genomics Medicine in Africa.Current genetic medicine reports · 2025Review
- Network Cluster Analysis of PPI and Phenotype Ontology for Type 1 Diabetes Mellitus.Iranian journal of biotechnology · 2024Article
- Inadvertent human genomic bycatch and intentional capture raise beneficial applications and ethical concerns with environmental DNA.Nature ecology & evolution · 2023Article
- Public engagement with genomics.Wellcome open research · 2023Review
- Exploring how biobanks communicate the possibility of commercial access and its associated benefits and risks in participant documents.BMC medical ethics · 2022Article
- Writing the worlds of genomic medicine: experiences of using participatory-writing to understand life with rare conditions.Medical humanities · 2022Article
- A concentric circles view of health data relations facilitates understanding of sociotechnical challenges for learning health systems and the role of federated data networks.Frontiers in big data · 2022Article
- Pursuing Public Health Benefit Within National Genomic Initiatives: Learning From Different Policies.Frontiers in genetics · 2022Article
- Making community voices heard in a research-health service alliance, the evolving role of the Community Advisory Group: a case study from the members' perspective.Research involvement and engagement · 2021Article
- Citizen engagement initiatives in precision health in the European Union member states: a scoping review.BMJ open · 2021Article
- A Web Screening on Educational Initiatives to Increase Citizens' Literacy on Genomics and Genetics.Frontiers in genetics · 2021Article
- Determinants of stakeholders' intention to adopt pharmacogenomic.The pharmacogenomics journal · 2020Article
- A deliberative study of public attitudes towards sharing genomic data within NHS genomic medicine services in England.Public understanding of science (Bristol, England) · 2020Article
- The mediating effects of public genomic knowledge in precision medicine implementation: A structural equation model approach.PloS one · 2020Article
- Learning from deep brain stimulation: the fallacy of techno-solutionism and the need for 'regimes of care'.Medicine, health care, and philosophy · 2019Article
Corrections and comments
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Authors and funding
2 authors.
Funding
Abstract
The United Kingdom's 100,000 Genomes Project has the aim of sequencing 100,000 genomes from National Health Service patients such that whole genome sequencing becomes routine clinical practice. It also has a research-focused goal to provide data for scientific discovery. Genomics England is the limited company established by the Department of Health to deliver the project. As an innovative scientific/clinical venture, it is interesting to consider how Genomics England positions itself in relation to public engagement activities. We set out to explore how individuals working at, or associated with, Genomics England enacted public engagement in practice. Our findings show that individuals offered a narrative in which public engagement performed more than one function. On one side, public engagement was seen as 'good practice'. On the other, public engagement was presented as core to the project's success - needed to encourage involvement and ultimately recruitment. We discuss the implications of this in this article.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.