ArticleAutism : the international journal of research and practice2019
Friendships and social participation as markers of quality of life of adolescents and adults with fragile X syndrome and autism.
Article in Autism : the international journal of research and practice, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
25 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Pooled it
- Pooled it
- Aligning Perspectives: Autism Identity, Independence, Participation, and Quality of Life in Autistic Adolescents Through Self and Parental Reports.Journal of autism and developmental disorders · 2026Article
- Factors associated with social participation among children with fragile X syndrome.Disability and health journal · 2026Article
- What Matters Most? Developing a Core Patient Reported Outcome Set for Individuals With Genetic Intellectual Disabilities: An International Delphi Study.Journal of intellectual disability research : JIDR · 2026Article
- Temporal Predictions in Music and Language: The Case of Autism Spectrum Disorder.Annals of the New York Academy of Sciences · 2025Review
- Patient reported outcomes used in clinical trials and core outcome sets for individuals with genetic intellectual disability: a scoping review.Journal of neurodevelopmental disorders · 2025Article
- Identifying Daily Living Skills From Childhood and Adolescence Predictive of Adult Outcomes in a Longitudinal Study of Autism and Related Developmental Conditions.Autism research : official journal of the International Society for Autism Research · 2025Article
- Experiences of friendship among autistic adults: a scoping review.Frontiers in psychiatry · 2025Review
- Correlates of Quality of Life in Autistic Individuals.Research in autism spectrum disorders · 2024Article
- Trajectories of Competitive Employment of Autistic Adults through Late Midlife.Healthcare (Basel, Switzerland) · 2024Article
- Language Skills Influence Transition Planning in Adolescents With Fragile X Syndrome.American journal on intellectual and developmental disabilities · 2024Article
- Article
- "Um" and "Uh" Usage Patterns in Children with Autism: Associations with Measures of Structural and Pragmatic Language Ability.Journal of autism and developmental disorders · 2023Article
- Social Participation Experiences of Families Raising a Young Child With Autism Spectrum Disorder: Implications for Mental Health and Well-Being.The American journal of occupational therapy : official publication of the American Occupational Therapy Association · 2023Article
- Variable patterns of daily activity participation across settings in autistic youth: A latent profile transition analysis.Autism : the international journal of research and practice · 2023Article
- "I Met Someone Like Me!": Autistic Adolescents and Their Parents' Experience of the KONTAKT® Social Skills Group Training.Journal of autism and developmental disorders · 2022Article
- Examining Growth Among College Students With Intellectual and Developmental Disability: A Longitudinal Study.Behavior modification · 2021Article
- Greater Social Interest Between Autistic and Non-autistic Conversation Partners Following Autism Acceptance Training for Non-autistic People.Frontiers in psychology · 2021Article
- Trajectories of Change in the Behavioral and Health Phenotype of Adolescents and Adults with Fragile X Syndrome and Intellectual Disability: Longitudinal Trends Over a Decade.Journal of autism and developmental disorders · 2020Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
Friendships and social participation are key domains of quality of life for individuals with intellectual disabilities. This study examined the friendships, social and recreational activities, and family social networks of individuals with intellectual disabilities from two distinct diagnostic groups: individuals diagnosed with fragile X syndrome (n = 81) compared with those diagnosed with autistic disorder (n = 226). Within each diagnostic group, individuals in two developmental stages were compared: adolescence and adulthood. Quality of life in friendships and social participation domains was notably low for individuals with fragile X and those with autism. Individuals with fragile X had more friendships and a less negative social impact on the family than individuals with autism. Across both groups, adolescents spent less time with friends and neighbors, and more time in exercising, than did adults.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.