ArticlePsycho-oncology2018
Participation and interest in support services among family caregivers of older adults with cancer.
Article in Psycho-oncology, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03746314 (Supportive Care Service Availability for Cancer Caregivers in Community Oncology Practices), which is not on this map. Cited by 31 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Supportive Care Service Availability for Cancer Caregivers in Community Oncology Practices
Who cites it
31 citing papers in PubMed, 2 syntheses or guidelines pooled it, 60 citations in OpenAlex.
- Conceptualizing Family Caregivers' Use of Community Support Services: A Scoping Review.The Gerontologist · 2024Pooled it
- Health and Well-Being Needs Among Head and Neck Cancer Caregivers - A Systematic Review.The Annals of otology, rhinology, and laryngology · 2023Pooled it
- Palliative Care Coaching for Family Caregivers of Patients With Advanced Cancer: A Randomized Clinical Trial.JAMA network open · 2026Trial
- A randomized controlled trial of a distress screening, consultation, and targeted referral system for family caregivers in oncologic care.Psycho-oncology · 2024Trial
- Reach and efficacy of the eHealth application Oncokompas, facilitating partners of incurably ill cancer patients to self-manage their caregiver needs: a randomized controlled trial.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Trial
- Trial
- Personalized Combined Nutrition & Exercise Intervention in Newly Diagnosed Cancer Patients - a Trial Protocol.Future science OA · 2025Article
- Feasibility and Acceptability of Collecting Passive Smartphone Data for Potential Use in Digital Phenotyping Among Family Caregivers and Patients With Advanced Cancer.JCO clinical cancer informatics · 2025Observational
- Article
- "Being an informal caregiver - strengthening resources": mixed methods evaluation of a psychoeducational intervention supporting informal caregivers in palliative care.BMC palliative care · 2024Article
- Developing a national implementation strategy to accelerate uptake of evidence-based family caregiver support in U.S. cancer centers.Psycho-oncology · 2024Article
- Potential Implementers' Perspectives on the Development and Implementation of an e-Mental Health Intervention for Caregivers of Adults With Chronic Kidney Disease: Qualitative Interview Study.JMIR human factors · 2023Article
- Closing the Caregiving Gap: Considerations for Pancreatic and Periampullary Cancer Caregivers.JCO oncology practice · 2023Article
- Characterizing caregiving supportive services use by caregiving relationship status.Journal of the American Geriatrics Society · 2023Article
- Quality of life and perceived burden of the primary caregiver of patients aged 70 and over with cancer 5 years after initial treatment.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Observational
- Study protocol for a randomized trial of a supportive care mobile application to improve symptoms, coping, and quality of life in patients with advanced non-small cell lung cancer.Frontiers in psychology · 2023Article
- Care for the Cancer Caregiver: a Qualitative Study of Facilitators and Barriers to Caregiver Integration and Support.Journal of cancer education : the official journal of the American Association for Cancer Education · 2022Article
- Article
- Caregiver Eligibility for Support Services: Correlates and Consequences for Resource Utilization.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2022Article
- Supportive care needs and service use during palliative care in family caregivers of patients with advanced cancer: a prospective longitudinal study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
13 authors at 7 institutions in 2 countries.
Funding
Abstract
objectiveThe purpose of this study was to describe distressed and underprepared family caregiver's use of and interest in formal support services (eg, professional counseling, education, organizational assistance).
methodCross-sectional mail survey conducted in communities of 8 cancer centers in Tennessee, Alabama, and Florida (response rate: 42%). Family caregivers of Medicare beneficiaries with pancreatic, lung, brain, ovarian, head and neck, hematologic, and stage IV cancers reported support service use and completed validated measures of depression, anxiety, burden, preparedness, and health.
resultsCaregivers (n = 294) were on average age 65 years and mostly female (73%), White (91%), and care recipients' spouse/partner (60%); patients averaged 75 years were majority male (54%) with lung cancer (39%). Thirty-two percent of caregivers reported accessing services while 28% were "mostly" or "extremely" interested. Thirty-five percent of caregivers with high depressive symptoms (n = 122), 33% with high anxiety symptoms (n = 100), and 25% of those in the lowest quartile of preparedness (n = 77) accessed services. Thirty-eight percent of those with high depressive symptoms, 47% with high anxiety symptoms, and 36% in the lowest quartile of preparedness were "mostly" or "extremely" interested in receiving services. Being interested in support services was significantly associated with being a minority, shorter durations of caregiving, and with higher stress burden.
conclusionsA large proportion of family caregivers, including those experiencing depression and anxiety symptoms and who were underprepared, are not using formal support services but have a strong interest in services. Strategies to increase service use may include targeting distressed caregivers early in their caregiving experience.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.