Evidence map›Paper›PMID 29226745›Full record

ArticleJournal of empirical research on human research ethics : JERHRE2018

Management of Adolescent-Parent Dyads' Discordance for Willingness to Participate in a Reproductive Health Clinical Trial.

Jenny K R Francis, Lauren Dapena Fraiz, Ariel M de Roche, Marina Catallozzi, Carmen Radecki Breitkopf, Susan L Rosenthal

Abstract read
In one paragraph

Article in Journal of empirical research on human research ethics : JERHRE, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed.

  1. Evaluation of an Interactive, Educational Website Developed for Adolescents to Learn About Pediatric Clinical Trials: DigiKnowIt News.Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners
    Trial
  2. Article
  3. Article
  4. A Research Agenda for Emergency Medicine-based Adolescent Sexual and Reproductive Health.Academic emergency medicine : official journal of the Society for Academic Emergency Medicine · 2019
    Article
  5. Article
  6. Giving adolescents a voice: the types of genetic information adolescents choose to learn and why.Genetics in medicine : official journal of the American College of Medical Genetics · 2019
    Article
  7. Article
  8. Adolescents' and Parents' Attitudes Toward Adolescent Clinical Trial Participation: Changes Over One Year.Journal of empirical research on human research ethics : JERHRE · 2018
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Jenny K R Francis1 University of Texas Southwestern Medical Center, Dallas, TX, USA.ORCID 0000-0001-9090-4529
Lauren Dapena Fraiz2 Columbia University Medical Center, New York, NY, USA.
Ariel M de Roche2 Columbia University Medical Center, New York, NY, USA.
Marina Catallozzi2 Columbia University Medical Center, New York, NY, USA.
Carmen Radecki Breitkopf4 Mayo Clinic, Rochester, MN, USA.
Susan L Rosenthal2 Columbia University Medical Center, New York, NY, USA.

Funding

Clinical and Translational Science CenterUL1TR000457 · NCATS · WEILL MEDICAL COLL OF CORNELL UNIV · PI IMPERATO-MCGINLEY, JULIANNE L · 2012 to 2016
$46.0M
Clinical and Translational Science AwardUL1TR000040 · NCATS · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI GINSBERG, HENRY N · 2012 to 2015
$26.2M
Adolescent and Parental Attitudes About STI Prevention Trial ParticipationR01HD067287 · NICHD · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI ROSENTHAL, SUSAN L · 2011 to 2015
$2.8M
NCATS NIH HHS UL1 TR000040NCATS NIH HHS UL1 TR000457NICHD NIH HHS R01 HD067287
6 · The paper itself

Abstract

The objective of this study is to understand the resolution of discordance between adolescent-parent dyads about participation in research. Adolescent (14-17 years) and parent dyads were recruited from NYC pediatric clinics to assess attitudes toward research participation. A subset of dyads participated in videotaped discussions about participation in a hypothetical study. Videos from dyads that held strongly discordant opinions about participation ( n = 30) were content-coded and analyzed using a thematic framework approach. Strategies used to resolve discordance included asserting authority, granting autonomy, or recognizing inaccurate assumptions using a variety of communication behaviors. Missed opportunities to enroll initially discordant dyads may be avoided by allowing time for adolescents and parents to elicit information, clarify a situation, or convince the other.

Indexed as

AttitudeBiomedical ResearchDecision MakingParent-Child RelationsParentsReproductive HealthResearch SubjectsAdolescentAdolescent BehaviorAdultCommunicationComprehensionDissent and DisputesFemaleHumansMaleadolescentconsentdecision makingdiscordancedyadsparentqualitativereproductive health

Identifiers

PMID29226745
PMCPMC5768459

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.