ArticleContemporary clinical trials communications2017
The Influence of Race and Ethnicity on Becoming a Human Subject: Factors Associated with Participation in Research.
Article in Contemporary clinical trials communications, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
34 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Diversity in Alzheimer's disease drug trials: The importance of eligibility criteria.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2022Pooled it
- Motivational interviewing to reduce risky sexual behaviors among at-risk male youth: A randomized controlled pilot study.Psychological services · 2022Trial
- Trial
- Comparison of Recruitment Strategies for Engaging Older Minority Adults: Results From Take Heart.The journals of gerontology. Series A, Biological sciences and medical sciences · 2020Trial
- Characteristics of drug-involved black women under community supervision; implications for retention in HIV clinical trials and healthcare.Social work in health careTrial
- Global Insights on the Involvement of Ethnic Minority Populations in Health and Social Care Research Priority Setting: A Systematic Scoping Review.Journal of racial and ethnic health disparities · 2026Article
- Outreach, Recruitment and Engagement Cores of NIA-designated Alzheimer's Disease Research Centers: Current strategies and future directions.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2026Review
- Bridging the gap: Understanding Latino willingness to participate in public health and clinical trials research across diverse subgroups.Contemporary clinical trials communications · 2025Article
- Revolutionizing Brain Research Using Portable MRI in Field Settings: Public Perspectives on the Ethical and Legal Challenges.Neuroethics · 2025Article
- Leveraging African American family connectors for Alzheimer's disease genomic studies.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2023Article
- A toolkit for capturing a representative and equitable sample in health research.Nature medicine · 2023Article
- Recruitment and Feasibility of Hair Cortisol Collection in a Sample of Ethnically and Sexually Diverse, Low-Income Adults: A Qualitative Community-Partnered Participatory Research Study.Journal of health care for the poor and underserved · 2023Article
- Development of an epigenetic clock to predict visual age progression of human skin.Frontiers in aging · 2023Article
- Clinical trial diversity: An opportunity for improved insight into the determinants of variability in drug response.British journal of clinical pharmacology · 2022Review
- Integrating DNA Methylation Measures of Biological Aging into Social Determinants of Health Research.Current environmental health reports · 2022Review
- An Elicitation Study to Understand Black, Hispanic, and Male Older Adults' Willingness to Participate in Alzheimer's Disease-Focused Research Registries.Journal of Alzheimer's disease : JAD · 2022Article
- Demographic and Health Behavior Factors Associated With Clinical Trial Invitation and Participation in the United States.JAMA network open · 2021Article
- Willingness to Participate in Health Research Among Community-Dwelling Middle-Aged and Older Adults: Does Race/Ethnicity Matter?Journal of racial and ethnic health disparities · 2021Article
- Reweighting to address nonparticipation and missing data bias in a longitudinal electronic health record study.Annals of epidemiology · 2020Article
- Opening doors to clinical trial participation among Hispanics: Lessons learned from the Spanish translation of ResearchMatch.Journal of clinical and translational science · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
Abstract
inroductionThe purpose of this study was to explore factors associated with willingness of African Americans and Latinos to participate in biomedical and public health research and to delineate factors that influences the decision to become a human subject.
methodsWe present results from a 2010 random digit-dial telephone survey of 2,455 African American (N= 1,191) and Latino (N= 1,264) adults. We used standard measures to assess knowledge of research, terminology, informed consent procedures, previous participation in research, health care experiences, social support, risk perception, religiousness, and trust.
resultsOver 60% of both African Americans and Latinos reported they believed people in medical research are pressured into participating. Over 50% said that it was not at all important to have someone of the same race/ethnicity ask them to participate. In a sub-sample of 322 African Americans and 190 Latinos who had previously been asked to participate in a research study, 63% of African Americans and 65% of Latinos consented to participate in a study. Finally, both African Americans (57%) and Latinos (68%) reported willingness to participate in future research. Overall, the multivariate analysis explained 29% of the variability in willingness to participate in future research.
conclusionsResults suggest that African Americans and Latinos have no automatic predisposition to decline participation in research studies. These results can inform culturally tailored interventions for ethical recruitment of minorities into research and clinical trials.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.