Evidence map›Paper›PMID 29191123›Full record

ArticleWestern journal of nursing research2018

Patient Perceptions of Barriers to Self-Management of Breast Cancer-Related Lymphedema.

Pamela L Ostby, Jane M Armer, Kandis Smith, Bob R Stewart

Erratum issued Registry-linked trialAbstract read
In one paragraph

Article in Western journal of nursing research, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. It is linked to trial NCT07154771 (Development and Usability Evaluation of an Arm Circumference Measurement Tool For Patients Undergoing Breast Surgery), which is not on this map. Cited by 24 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
24citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT07154771 naactive not recruitingnot on this mapstarted 2025, after this paper: background citation

Development and Usability Evaluation of an Arm Circumference Measurement Tool For Patients Undergoing Breast Surgery

TypeinterventionalSponsorSaglik Bilimleri Universitesi Gulhane Tip FakultesiRan2025 to 2025Enrolled35ConditionsBreast Surgery, Breast Cancer, LymphedemaArmsFirst with the arm circumference measurement tool, then with the traditional tape measure, First with the traditional tape measure , then with the arm circumference measurement tool
3 · Its place in the literature

Who cites it

24 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Psychosocial experiences of breast cancer survivors: a meta-review.Journal of cancer survivorship : research and practice · 2024
    Pooled it
  3. Article
  4. Beyond breast cancer: mapping unmet needs and advancing an evidence-based framework of survivorship care.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Review
  5. Experience of family caregivers of breast cancer-related lymphedema patients participating in lymphedema management: a phenomenological study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  6. Article
  7. Barriers and facilitators to self-management in people living with a lower-grade glioma.Journal of cancer survivorship : research and practice · 2025
    Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Review
  16. Article
  17. Review
  18. Article
  19. Breast cancer-related lymphedema patient and healthcare professional experiences in lymphedema self-management: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021
    Article
  20. Healthcare Practitioners' Knowledge of Lymphedema.International journal of vascular medicine · 2021
    Review
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

4 authors.

Pamela L Ostby1 University of Missouri, Columbia, MO, USA.ORCID 0000-0001-5098-1191
Jane M Armer1 University of Missouri, Columbia, MO, USA.
Kandis Smith1 University of Missouri, Columbia, MO, USA.
Bob R Stewart1 University of Missouri, Columbia, MO, USA.

Funding

Building Patient Centered Outcomes Research Capacity: Care TransitionsR24HS022140 · AHRQ · UNIVERSITY OF MISSOURI-COLUMBIA · PI MEHR, DAVID R · 2013 to 2017
$4.5M
AHRQ HHS R24 HS022140
6 · The paper itself

Abstract

Breast cancer survivors are at lifetime risk for the development of breast cancer-related lymphedema, a chronic, potentially debilitating condition that requires life-long symptom management. Suboptimal self-management rates suggest that health care providers may not be offering educative-support options that are customized to patient-perceived needs. An Institutional Review Board-approved focus group ( N = 9) and mailed surveys ( N = 15) were used to identify (a) barriers to lymphedema self-management, (b) how breast cancer survivors with lymphedema defined education and support, (c) what type of education and support they had received, and (d) what kind of education and support they wanted. Physiological, psychological, and psychosocial factors were identified as barriers to successful lymphedema self-management. One of the main barriers identified was lack of education about lymphedema treatment and risk reduction. In addition, more than half defined support as "prescriptions" and "referrals"; therefore, it is unclear whether patients were exposed to support other than medical treatment.

Indexed as

PerceptionSelf-ManagementAgedBreast Cancer LymphedemaCancer SurvivorsFemaleFocus GroupsHumansPatient Education as TopicQualitative ResearchSocial SupportSurveys and Questionnaireslymphedemapatient compliancepatient educationself-caresocial support

Identifiers

PMID29191123
PMCPMC6057842

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.