ArticleSocial science & medicine (1982)2018
Research altruism as motivation for participation in community-centered environmental health research.
Article in Social science & medicine (1982), 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 1 of them a synthesis that pooled it.
What it found
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
36 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Parental Views of Facilitators and Barriers to Research Participation: Systematic Review.Pediatrics · 2023Pooled it
- Improving uptake and completion of pulmonary rehabilitation in COPD with lay health workers: feasibility of a clinical trial.International journal of chronic obstructive pulmonary diseaseTrial
- Drivers of Research Participation Among Racially and Ethnically Underrepresented Women: Insights from Semi-Structured Interviews.Journal of racial and ethnic health disparities · 2026Article
- Guide on Selection of Optimal Motivational Themes for Use in a Clinical Trial Recruiting Black US Adults: Survey Study.Journal of medical Internet research · 2026Article
- Article
- Beyond cognitive distortions: the mediating role of passion between erroneous cognitions and gambling severity.Australian journal of psychology · 2026Article
- Mapping the path to diversity in clinical trials: a qualitative study of community member and stakeholder perspectives.BMC public health · 2025Article
- PRE-POET: a qualitative interview-based study to explore patient-relevant factors in the context of prostate biopsy.BMC urology · 2025Article
- The Ethics of Informed Consent for Data Registries: Moving Beyond Moral Minimalism to the High Ground.Bioethics · 2025Article
- Article
- Non-participation in a health examination survey in a rural-provincial area of Denmark - results from the Lolland-Falster Health Study (LOFUS).Scandinavian journal of public health · 2024Article
- Motivations for and against Participation in Neonatal Research: Insights from Interviews of Diverse Parents Approached for Neonatal Research in the United States.The Journal of pediatrics · 2024Article
- Article
- Participant-reported personal utility of genetic testing for Parkinson's disease and interest in clinical trial participation.NPJ Parkinson's disease · 2024Article
- "When selling anything to an audience, visible publicity is key:" experiences, barriers, and enablers to participate in a COVID-19 study in Malawi.BMC medical research methodology · 2024Article
- Group-based exercise for Parkinson's: a qualitative study of participants and partners' perceptions of an exercise class delivered through a community-university collaboration.BMC geriatrics · 2024Article
- Perspectives from diverse stakeholders in a youth community-based participatory research project.Evaluation and program planning · 2023Article
- Factors related to eczema clinical trial participation among adult patients and caregivers.Contemporary clinical trials communications · 2023Article
- Study Navigation and Enrollment in a Community Sample: Does Generational Cohort Matter?Journal of intergenerational relationships · 2023Article
- FarGen - participants in the genetic research infrastructure of the Faroe Islands.Scandinavian journal of public health · 2022Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
Protection of human subjects in research typically focuses on extrinsic rather than intrinsic motivations for participation in research. Recent sociological literature on altruism suggests that multiple kinds of altruism exist and are grounded in a sense of connection to common humanity. We interviewed participants in eight community-centered research studies that sampled for endocrine disrupting compounds and that shared research findings with participants. The results of our analysis of participation in these studies indicate that altruistic motivations were commonly held. We found that these sentiments were tied to feeling a sense of connection to society broadly, a sense of connection to science, or a sense of connection with the community partner organization. We develop a new concept of banal altruism to address mundane practices that work towards promoting social benefits. Further, we offer that research altruism is a specific type of banal altruism that is a multi-faceted and important reason for which individuals choose to participate in community-centered research.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.