ArticleJournal of autism and developmental disorders2018
Enhancing the Validity of a Quality of Life Measure for Autistic People.
Article in Journal of autism and developmental disorders, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 109 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
109 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Predictors of Health-Related Quality of Life in Neurodivergent Children: A Systematic Review.Clinical child and family psychology review · 2024Pooled it
- Loneliness in autistic adults: A systematic review.Autism : the international journal of research and practice · 2022Pooled it
- Mindfulness for Children and Adults with Autism Spectrum Disorder and Their Caregivers: A Meta-analysis.Journal of autism and developmental disorders · 2019Pooled it
- Secondary effects of dialectical behaviour therapy on social functioning, quality of life, and autism traits in autistic adults with suicidality.Autism : the international journal of research and practice · 2025Trial
- A Pilot Randomised Control Trial Exploring the Feasibility and Acceptability of Delivering a Personalised Modular Psychological Intervention for Anxiety Experienced by Autistic Adults: Personalised Anxiety Treatment-Autism (PAT-A).Journal of autism and developmental disorders · 2024Trial
- Quality of life in adults with autism spectrum disorder: influence of age, sex, and a controlled, randomized mindfulness-based stress reduction pilot intervention.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Trial
- The impact of schizotypy on quality of life among adults with autism spectrum disorder.BMC psychiatry · 2022Trial
- Comprehensive Psychometric Evaluation of the Child/Adult and Family Quality of Life Scale : Third Edition.Journal of autism and developmental disorders · 2026Article
- System-Specific Epigenetic Aging Signatures in Autistic Adults.bioRxiv : the preprint server for biology · 2026Article
- A Comprehensive Toolkit to Support Self-Report Questionnaires for Autistic Adults With Cognitive Disability.Journal of applied research in intellectual disabilities : JARID · 2026Article
- UK Medical Cannabis Registry: A Clinical Outcomes Analysis for Autism Spectrum Disorder.Neuropsychopharmacology reports · 2026Observational
- Quality of Life and Specific Difficulties of Children with Autism Spectrum Disorder Among Saudi Primary Caregivers.Healthcare (Basel, Switzerland) · 2026Article
- What Is Phenomenology For? Applications in Autism Mental Health and a Pragmatist Criterion of Success.Psychopathology · 2026Review
- Using Photovoice to Capture the Quality of Life of the Australian Autistic Community.Autism in adulthood · 2026Article
- Chromosome 22q13 terminal deletion size is associated with relevant clinical features in a sample of 63 Italian patients with Phelan-McDermid syndrome.Journal of neurodevelopmental disorders · 2026Article
- The Signposting Questionnaire for Autism-2 (SQ-A-2): using input from autistic adults to inform questionnaire development.Molecular autism · 2026Article
- Bridging Gaps: Enhancing Sleep and Health Disparities in Latino Families with Young Adults with Autism Using a Culturally Adapted Intervention.Journal of racial and ethnic health disparities · 2026Article
- Social relationships and mental wellbeing in autistic adolescent girls and boys: A longitudinal investigation.JCPP advances · 2026Article
- Does Camouflaging Cause Reduced Quality of Life? A Co-Twin Control Study.Journal of autism and developmental disorders · 2026Article
- Beyond benchmarks: a narrative review of evolving quality of life frameworks for children with neurodevelopmental and learning disabilities and the need for integrated digital twin approaches.Frontiers in public health · 2026Review
49 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Accurate measurement of quality of life (QoL) is important for evaluation of autism services and trials of interventions. We undertook psychometric validation of the World Health Organisation measure-WHOQoL-BREF, examined construct validity of the WHO Disabilities module and developed nine additional autism-specific items (ASQoL) from extensive consultation with the autism community. The sample of 309 autistic people was recruited from the Adult Autism Spectrum Cohort-UK. The WHOQoL-BREF had good psychometric properties, including criterion, convergent, divergent and discriminant validity. The WHO Disabilities module showed adequate construct validity and reliability. The ASQoL items form a unitary factor of QoL, with one global item. Future studies can use the WHO measures alongside the ASQoL items to measure QoL of autistic people.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.