ArticleBMC family practice2017
Experiences and needs of carers of Aboriginal children with a disability: a qualitative study.
Article in BMC family practice, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed.
- Acute otitis media symptoms and symptom scales in research with Aboriginal and Torres Strait Islander children.PloS one · 2023Trial
- 'Care Is Lost When You Get Jumbled Around'-Aboriginal Grandmothers and Family Perspectives of Cultural Continuity in Healthcare as Recipients of Care in Mainstream Health Services in South Australia.Journal of racial and ethnic health disparities · 2026Article
- Disparities in access to health and support services for people with disability in Australia: a scoping review of the structural social determinants.BMC health services research · 2025Article
- Article
- Health challenges faced by parents of children with disabilities: a scoping review.BMC pediatrics · 2024Article
- The economic burden of congenital Zika Syndrome in Brazil: an overview at 5 years and 10 years.BMJ global health · 2022Article
- Aboriginal children and family connections to primary health care whilst homeless and in high housing mobility: observations from a Nurse Practitioner-led service.Primary health care research & development · 2022Article
- What we need as we get older: needs assessment for the development of a community geriatrics service in an Australian context.BMC geriatrics · 2021Article
- 'It looks like a breadbox': a pilot study investigating implementation of the Pepi-Pod® program with Aboriginal families in metropolitan South Australia.Primary health care research & development · 2021Article
- Indigenous Australians with autism: A scoping review.Autism : the international journal of research and practice · 2020Article
- The association of depression, anxiety, and stress with caring for a child with Congenital Zika Syndrome in Brazil; Results of a cross-sectional study.PLoS neglected tropical diseases · 2019Article
- Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
backgroundAustralian parents/carers of a person with a disability experience higher rates of depression, more financial stress, and are twice as likely to be in poor physical health than the general population. Aboriginal and Torres Strait Islander peoples experience worse health, social and economic outcomes than other Australians, and those with a disability face 'double disadvantage'. This study aimed to better understand the experiences and needs of parents/carers/families of Aboriginal children with a disability.
methodsSemi-structured in-depth interviews were conducted with parents or primary carers of Aboriginal children aged zero-eight with disability. Interviews were analysed using thematic analysis.
resultsNineteen women (sixteen mothers and three grandmothers) were interviewed. More than half were lone carers (without a partner or spouse). Participants described their experiences, including challenges and facilitators, to providing and accessing care, impacts on their health and wellbeing, and associated economic and non-economic costs of caregiving. Financial strain and social isolation was particularly prominent for lone carers.
conclusionsTailoring services to the needs of carers of Aboriginal children with a disability means supporting kinship caregiving, facilitating engagement with other Aboriginal families, and streamlining services and systems to mitigate costs. The experiences described by our participants depict an intersection of race, socio-economic status, gender, disability, and caregiving. Services and funding initiatives should incorporate such intersecting determinants in planning and delivery of holistic care.
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