Evidence map›Paper›PMID 29183927›Full record

ArticleBMJ open2017

Challenges to discussing palliative care with people experiencing homelessness: a qualitative study.

Briony F Hudson, Caroline Shulman, Joseph Low, Nigel Hewett, Julian Daley, Sarah Davis, Nimah Brophy, Diana Howard, Bella Vivat, Peter Kennedy and 1 more

Open access · goldAbstract read
In one paragraph

Article in BMJ open, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
21citing papers in PubMed, 2 pooled it
6.4field-weighted citation impact, top 4% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

21 citing papers in PubMed, 2 syntheses or guidelines pooled it, 39 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 4 institutions in 3 countries.

Briony F HudsonPathway, London, UK.ORCID http://orcid.org/0000-0002-2907-1764
Caroline ShulmanPathway, London, UK.
Joseph LowMarie Curie Palliative Care Research Department, Division of Psychiatry, UCL, London, UK.
Nigel HewettPathway, London, UK.
Julian DaleyPathway, London, UK.
Sarah DavisMarie Curie Palliative Care Research Department, Division of Psychiatry, UCL, London, UK.
Nimah BrophySt Mungos, London, UK.
Diana HowardCoordinate My Care, The Royal Marsden NHS Foundation Trust, London, UK.
Bella VivatMarie Curie Palliative Care Research Department, Division of Psychiatry, UCL, London, UK.
Peter KennedyPathway, London, UK.
Patrick StoneMarie Curie Palliative Care Research Department, Division of Psychiatry, UCL, London, UK.
University College Lahore · PKPathways Behavioral Services · USKing's College - North Carolina · USRoyal Marsden NHS Foundation Trust · GB

Funding

Marie Curie MCCC-FCH-18-UMarie Curie MCCC-FCO-11-U
6 · The paper itself

Abstract

objectivesTo explore the views and experiences of people who are homeless and those supporting them regarding conversations and approaches to palliative care

settingData were collected between October 2015 and October 2016 in homeless hostels and day centres and with staff from primary and secondary healthcare providers and social care services from three London boroughs.

participantsPeople experiencing homelessness (n=28), formerly homeless people (n=10), health and social care providers (n=48), hostel staff (n=30) and outreach staff (n=10

results28 focus groups and 10 individual interviews were conducted. Participants highlighted that conversations exploring future care preferences and palliative care with people experiencing homelessness are rare. Themes identified as challenges to such conversations included attitudes to death; the recovery focused nature of services for people experiencing homelessness; uncertainty regarding prognosis and place of care; and fear of negative impact.

conclusionsThis research highlights the need for a different approach to supporting people who are homeless and are experiencing advanced ill health, one that incorporates uncertainty and promotes well-being, dignity and choice. We propose parallel planning and mapping as a way of working with uncertainty. We acknowledge that these approaches will not always be straightforward, nor will they be suitable for everyone, yet moving the focus of conversations about the future away from death and dying, towards the present and the future may facilitate conversations and enable the wishes of people who are homeless to be known and explored.

Indexed as

Attitude of Health PersonnelAttitude to DeathIll-Housed PersonsPatient Acceptance of Health CareCommunicationFemaleFocus GroupsHealth Knowledge, Attitudes, PracticeHumansInterviews as TopicLondonMalePalliative CareQualitative ResearchQuality of LifeSocial Workend of life carefocus groupshomeless personspalliative carequalitativesubstance related disorders

Identifiers

PMID29183927
PMCPMC5719327
OpenAlexW2769488951

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.