ArticleJournal of palliative medicine2018
A Summary of Pediatric Palliative Care Team Structure and Services as Reported by Centers Caring for Children with Cancer.
Article in Journal of palliative medicine, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 43 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
43 citing papers in PubMed, 2 syntheses or guidelines pooled it, 89 citations in OpenAlex.
- Referral to cancer rehabilitation in the cancer care continuum: barriers, inequities, and opportunities for integration-a scoping review.Frontiers in psychology · 2026Pooled it
- Specialist paediatric palliative care for children and young people with cancer: A mixed-methods systematic review.Palliative medicine · 2020Pooled it
- Integrating Electronic Patient-Reported Outcomes and Palliative Care in Pediatric Advanced Cancer: The PediQUEST Response Multisite Randomized Controlled Trial.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2026Trial
- Assessing the palliative care needs of children with cancer and their families in tertiary care centres in India: A multicentre observational study.Palliative care and social practice · 2026Article
- Delivering Care Consistent With the Psychosocial Standards-Provider Report: Implementing the Standards Together-Engaging Parents and Providers in Psychosocial Care (iSTEPPP) Study.Pediatric blood & cancer · 2025Article
- The Rhythm of Connection: Describing the Heartbeats Intervention for Patients and Families Receiving Paediatric Palliative Care.Children (Basel, Switzerland) · 2025Article
- Adult specialist palliative care services caring for children in the community: a scoping review.BMC palliative care · 2025Article
- Early Versus Late Pediatric Palliative Care in Oncology: A Systematic Review of Outcomes, Disparities, and Implementation Barriers : Palliative Care in Oncology.Galen medical journal · 2025Review
- Alignment of Palliative Care Service Structure and Standards of Care for Adolescents and Young Adults with Cancer: An International Survey of Clinical Practice.Journal of palliative medicine · 2024Article
- Barriers and facilitators influencing referral and access to palliative care for children and young people with life-limiting and life-threatening conditions: a scoping review of the evidence.Palliative medicine · 2024Article
- Oncologists' palliative care referral behaviour: testing utility of social exchange theory as an explanatory framework.BMC palliative care · 2024Article
- Barriers to the spiritual care of parents taking care of their child with a life-limiting condition at home.European journal of pediatrics · 2024Article
- Paediatric palliative care in cancer.Ecancermedicalscience · 2024Review
- Attachment as a mechanism influencing end-of-life communication: An analogue investigation.PloS one · 2024Article
- Palliative care services in paediatric oncology centres across Europe: A cross-sectional survey.EJC paediatric oncology · 2023Article
- Biobehavioral Influences of Stress and Inflammation on Mucositis in Adolescents and Young Adults with Cancer: Results from a Pilot Study.Journal of adolescent and young adult oncology · 2023Article
- Article
- Presuppositions, cost-benefit, collaboration, and competency impacts palliative care referral in paediatric oncology: a qualitative study.BMC palliative care · 2022Article
- Pediatric palliative care for children with cancer: a concept analysis using Rodgers' evolutionary approach.World journal of pediatrics : WJP · 2022Review
- Choiceless options: when hospital-based services represent the only palliative care offering.Pediatric research · 2022Review
Corrections and comments
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Authors and funding
5 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundLittle is known about the composition, availability, integration, communication, perceived barriers, and work load of pediatric palliative care (PPC) providers serving children and adolescents with cancer.
objectiveTo summarize the structure and services of programs to better understand successes and gaps in implementing palliative care as a standard of care.
methodsCross-sectional online survey about the palliative care domains determined by the Psychosocial Care of Children with Cancer and Their Families Workgroup. SUBJECTS: A total of 142 surveys were completed with representation from 18 countries and 39 states.
resultsThree-fourths of sites reported having a PPC program available for the pediatric cancer population at their center. Over one-fourth (28%) have been in existence less than five years. Fewer than half of sites (44%) offered 24/7 access to palliative care consultations. Neither hospital-based nor local community hospice services were available for pediatric patients at 24% of responding sites. A specific inpatient PPC unit was available at 8% of sites. Criteria for automatic palliative referrals ("trigger" diagnoses) were reported by 44% respondents. The presence of such "triggers" increased the likelihood of palliative principle introduction 3.41 times (p < 0.003). Six percent of respondents perceived pediatric oncology patients and their families "always" were introduced to palliative care concepts and 17% reported children and families "always" received communication about palliative principles. The most prevalent barriers to palliative care were at the provider level. DISCUSSION: Children and adolescents with cancer do not yet receive concurrent palliative care as a universal standard.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.