ArticleFamilies, systems & health : the journal of collaborative family healthcare2018
Adolescent and parent perspectives on medical decision-making for chronic illness.
Article in Families, systems & health : the journal of collaborative family healthcare, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
2 citing papers in PubMed, 14 citations in OpenAlex.
- 'High hopes for treatment': Australian stakeholder perspectives of the clinical translation of advanced neurotherapeutics for rare neurological diseases.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Decisional conflict among adolescents and parents making decisions about genomic sequencing results.Clinical genetics · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 2 institutions in 1 country.
Funding
Abstract
introductionThe objective of the study was to assess correlates of adolescent and parent perceptions of their involvement in medical decision-making (MDM).
methodStudy participants included 28 pairs of pediatric patients with chronic rheumatologic illnesses and their parents presenting to an outpatient rheumatology clinic. Participants completed measures assessing perceptions of MDM involvement, health consciousness, and decisional conflict.
resultsAdolescent health consciousness correlated positively with parent health consciousness and adolescent-valuing involvement. There was a significant positive correlation between adolescents-valuing involvement in medical decisions and perception of actual involvement. Adolescents who perceived themselves as more involved in their care reported less decisional conflict. Parents who wanted to participate in MDM reported greater actual involvement. DISCUSSION: Adolescents who value participation in MDM reported higher levels of actual participation, suggesting their preferences may be considered by providers. Greater engagement in MDM was related to lower decisional conflict for adolescents, suggesting that including adolescents in the MDM process does not necessarily result in confusion or distress. (PsycINFO Database Record
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.