ArticleThe Korean journal of internal medicine2019
Development, validation, and application of a novel tool to measure disease-related knowledge in patients with inflammatory bowel disease.
Article in The Korean journal of internal medicine, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04893928 (Role of Information and Communication Technologies for Health Support in Inflammatory Bowel Diseases), which is not on this map. Cited by 20 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Role of Information and Communication Technologies for Health Support in Inflammatory Bowel Diseases: The DAMASCO Trial (Stage I)
Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it, 34 citations in OpenAlex.
- Pediatric to Adult Transition in Inflammatory Bowel Disease: Consensus Guidelines for Australia and New Zealand.Inflammatory bowel diseases · 2025Guideline
- The Effectiveness of Patient Training in Inflammatory Bowel Disease Knowledge via Instagram: Randomized Controlled Trial.Journal of medical Internet research · 2022Trial
- Knowledge Gaps, Treatment Preferences, and Unmet Clinical Needs Among Patients With Inflammatory Bowel Disease: A Cross-Sectional Study.The Kaohsiung journal of medical sciences · 2026Article
- Validation of the Korean Version of a Knowledge Assessment Tool for Children With Inflammatory Bowel Disease.Journal of Korean medical science · 2026Article
- Awareness of inflammatory bowel disease-associated colorectal cancer risk and its management in patients with inflammatory bowel disease: a systematic review.Crohn's & colitis 360 · 2026Article
- Inflammatory Bowel Disease Self-Care Behaviors in Context of Psychosocial Factors.Digestive diseases and sciences · 2025Article
- Article
- Commentary on: "Different perceptions on the diagnosis and treatment of Crohn's disease between patients and gastroenterologists: a multicenter retrospective study".Therapeutic advances in gastroenterology · 2025Article
- Knowledge in Inflammatory Bowel Disease: Translation to Portuguese, Validation, and Clinical Application of the IBD-KNOW Questionnaire.GE Portuguese journal of gastroenterology · 2024Article
- Effect of a gamified mobile-based self-management application on disease activity index, quality of life, and mental health in adults with inflammatory bowel disease: A protocol of a randomized controlled trial study.Health science reports · 2024Article
- Knowledge Levels About Inflammatory Bowel Disease Vary Between Healthcare Professional Groups.Digestive diseases and sciences · 2024Article
- The development of a novel, multilingual IBD knowledge questionnaire for Asian patients with inflammatory bowel disease.BMC gastroenterology · 2023Article
- Development and validation of a questionnaire to test Chinese patients' knowledge of inflammatory bowel disease.Scientific reports · 2023Article
- A Short Knowledge Assessment Tool Is Valid and Acceptable for Adults with Inflammatory Bowel Disease.Digestive diseases and sciences · 2022Article
- Assessment of patients' understanding of inflammatory bowel diseases: Development and validation of a questionnaire.United European gastroenterology journal · 2022Article
- Application of Health Education Based on Phased Transition Theory Model in Continuous Nursing for Patients with Inflammatory Bowel Disease.Emergency medicine international · 2022Article
- Determinants of disease-specific knowledge among children with inflammatory bowel disease and their parents: A multicentre study.World journal of gastroenterology · 2021Article
- Higher levels of disease-related knowledge reduce medical acceleration in patients with inflammatory bowel disease.PloS one · 2020Article
- Survey of Pharmacist-Led Medication Guidance for Patients with Inflammatory Bowel Disease in Japan.Inflammatory intestinal diseasesArticle
- Factors of Self-Care Agency in Patients with Inflammatory Bowel Disease in Japan.Inflammatory intestinal diseasesArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors at 5 institutions in 1 country.
Funding
Abstract
BACKGROUND/
aimsThe Crohn's and Colitis Knowledge (CCKNOW) score does not reflect updated knowledge relating to inflammatory bowel disease (IBD). The aim of this study was to develop, validate, and apply a novel tool to measure disease-related knowledge in IBD patients.
methodsA questionnaire composed of 24 items regarding knowledge of IBD was developed: Inflammatory Bowel Disease Knowledge (IBD-KNOW). Discriminate ability of IBD-KNOW was validated in three occupational groups (14 doctors, 20 nurses, and 19 clerks). The CCKNOW and IBD-KNOW were administered to IBD patients. Factors affecting the level of IBD-related knowledge were analyzed.
resultsThe median Inflammatory Bowel Disease Knowledge (IBD-KNOW) score was significantly different among the three groups for validation (22 doctors, 20 nurses, and five clerks; p < 0.001). The IBD-KNOW showed excellent internal consistency (Cronbach α = 0.952) and high correlation with CCKNOW (Spearman ρ = 0.827, p = 0.01). A total of 200 IBD patients (120 Crohn's disease, 80 ulcerative colitis) completed questionnaires. Multivariate analysis showed that a higher IBDKNOW score than the median was associated with hospitalization history (odds ratio [OR], 2.625; p = 0.003), high education level (OR, 2.498; p = 0.012), and information acquired from patient organization (OR, 3.305, p = 0.035).
conclusionThe IBD-KNOW demonstrated excellent test characteristics. Hospitalization history, education level, and information acquired from patient organization play an important role in correct IBD-related knowledge.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.