ArticleBMC geriatrics2017
Mortality patterns and risk among older men and women with intellectual disability: a Swedish national retrospective cohort study.
Article in BMC geriatrics, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers, 2 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
29 citing papers in PubMed, 2 syntheses or guidelines pooled it, 59 citations in OpenAlex.
- Healthy ageing for older adult people with intellectual disability: a scoping review.Archives of public health = Archives belges de sante publique · 2025Pooled it
- Respiratory-associated deaths in people with intellectual disabilities: a systematic review and meta-analysis.BMJ open · 2021Pooled it
- Preventive breast health care, an embarrassing subject for women with intellectual disability.Journal of intellectual disabilities : JOID · 2026Article
- Lifetime risk of solid tumors and leukemia in Down Syndrome: a population-based Swedish matched cohort study.British journal of cancer · 2026Article
- Overlooked and undertreated: Hearing loss among individuals with intellectual disabilities - A German cohort study.PLOS global public health · 2026Article
- Good life in old age: Qualitative interviews about ageing with older adults with mild intellectual disability, prior to an educational intervention.Journal of intellectual disabilities : JOID · 2024Article
- Article
- An Ethnographic Study Concerning the Implementation of Education on Ageing for Older Adults with Mild Intellectual Disability: The Perspective of the Educators.International journal of environmental research and public health · 2024Article
- Disparities in Breast Cancer Screening Rates Among Adults With and Without Intellectual and Developmental Disabilities.Annals of surgical oncology · 2024Article
- Retirement of workers with intellectual and developmental disabilities.International review of research in developmental disabilities · 2024Article
- Weight reduction and dietary improvements in a cluster-randomised controlled trial for adults with intellectual disabilities.Food & nutrition research · 2023Article
- Ageing people with intellectual disabilities and the association between frailty factors and social care: A Swedish national register study.Journal of intellectual disabilities : JOID · 2022Article
- Community-Based Support and Social Services and Their Association with Frailty Factors in Older People with Intellectual Disability and Affective and Anxiety Disorders: A Swedish National Population-Based Register Study.Community mental health journal · 2022Article
- Mortality rate and cause among people with intellectual disabilities in South Korea: A nationwide representative cross-sectional study from 2015 to 2019.PLOS global public health · 2022Article
- Ambivalence among staff regarding ageing with intellectual disabilities: Experiences and reflections.Journal of intellectual disabilities : JOID · 2021Article
- Association of Intellectual Disability With All-Cause and Cause-Specific Mortality in Sweden.JAMA network open · 2021Article
- Health Conditions in Adults With Cerebral Palsy: The Association With CP Subtype and Severity of Impairments.Frontiers in neurology · 2021Article
- Health care utilisation among older people with Down syndrome compared to specific medical guidelines for health surveillance: a Swedish national register study.BMC health services research · 2020Article
- Disparities in cancer-related healthcare among people with intellectual disabilities: A population-based cohort study with health insurance claims data.Cancer medicine · 2020Article
- Mortality of people with intellectual disabilities during the 2017/2018 influenza epidemic in the Netherlands: potential implications for the COVID-19 pandemic.Journal of intellectual disability research : JIDR · 2020Article
Corrections and comments
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Authors and funding
3 authors at 3 institutions in 1 country.
Funding
Abstract
backgroundSweden has closed all institutions and imposed legislation to ensure service and support for individuals with intellectual disability (ID). Understanding mortality among older individuals with ID is essential to inform development of health promotion and disease control strategies. We investigated patterns and risk of mortality among older adults with ID in Sweden.
methodsThis retrospective cohort study compared older adults aged 55 years and older with ID with a control population. Participants were followed during 2002-2015 or death, and censored if they moved out of Sweden. Individuals with ID were identified from two national registers: one covering all specialist health-care visits (out-patient visits and hospitalisation) and the other covering people accessing social/support services. Individuals with ID (n = 15,289) were matched with a control population by sex, birth year, and year of first hospitalisation/out-patient visit/access to LSS services. Cause-of-death data were recorded using International Classification of Diseases, Tenth Revision. Cox proportional hazards regression were conducted to assess if overall and cause-specific mortality rate among individuals with ID was higher than in the Swedish population.
resultsThe overall mortality rate among individuals with ID was 2483 per 100,000 people compared with 810 in the control population. Among those who died, more individuals with ID were younger than 75 years and unmarried. Leading causes of death among individuals with ID were circulatory diseases (34%), respiratory diseases (17%) and neoplasms (15%). Leading causes of death in a sub-sample with Down syndrome (DS) were respiratory diseases (37%), circulatory diseases (26%) and mental/behavioural disorders (11%). Epilepsy and pneumonitis were more common among individuals with ID than controls. Alzheimer's disease was common in the control population and individuals with DS, but not among those with ID when DS was excluded. Individuals with ID had a higher overall mortality risk (hazard ratio [HR] 4.1, 95% confidence interval [CI] 4.0-4.3) and respiratory disease death risk (HR 12.5, 95% CI 10.9-14.2) than controls.
conclusionOlder adults with ID in Sweden carry a higher mortality risk compared with the general population, mainly attributable to respiratory, nervous and circulatory diseases. Care for this group, particularly during the terminal stage of illness, needs to be tailored based on understanding of their main health problem.
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