ArticleHealth expectations : an international journal of public participation in health care and health policy2018
Diabetes-related complications: Which research topics matter to diverse patients and caregivers?
Article in Health expectations : an international journal of public participation in health care and health policy, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed.
- Feasibility of a Low-Intensity, Technology-Based Intervention for Increasing Physical Activity in Adults at Risk for a Diabetic Foot Ulcer: A Mixed-Methods Study.Journal of diabetes science and technology · 2019Trial
- Endocrinology and metabolism research institute educational achievements on diabetes at a glance: conventional review and Scientometrics.Journal of diabetes and metabolic disorders · 2024Review
- Patients as teachers: a within-subjects randomized pilot experiment of patient-led online learning modules for health professionals.BMC medical education · 2024Article
- Article
- Diabetes-related research priorities of people with type 1 and type 2 diabetes: a cross-sectional study in Germany.Scientific reports · 2022Article
- Inter-individual relationships within a Canadian SPOR research network: a social network study.BMC health services research · 2022Article
- Predictive models of diabetes complications: protocol for a scoping review.Systematic reviews · 2020Article
- Patients' perspectives on how to improve diabetes care and self-management: qualitative study.BMJ open · 2020Article
- Diabetes-related complications: Which research topics matter to diverse patients and caregivers?Health expectations : an international journal of public participation in health care and health policy · 2018Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
backgroundDiabetes is a chronic disease with increasing prevalence worldwide. Although research has improved its treatment and management, little is known about which research topics matter to people living with diabetes, particularly among under-represented groups.
objectivesTo explore the importance of research topics among a diverse range of people living with any type of diabetes or caring for someone living with any type of diabetes.
methodsWe used a convergent mixed-method design with quantitative and qualitative aspects. We surveyed a national sample of people living with diabetes and caregivers of people with diabetes, asking them to rate the importance of 10 predetermined important research topics. We also held three focus groups in two major cities to explore research concerns of people who are under-represented in research.
results469 adults (57% men, 42% women) in Canada completed the online survey, indicating that all 10 areas of research mattered to them, with the highest ratings accorded to preventing and treating kidney, eye and nerve complications. Fourteen individuals participated in three focus groups and similarly noted the importance of research on those three complications. Additionally, focus group participants also noted the importance of research around daily management. No new topics were identified.
conclusionsThis study confirmed the importance of research topics among a population of people living with or caring for someone with diabetes. Findings from this study were used to inform the vision for Diabetes Action Canada-a pan-Canadian Strategy for Patient-Oriented Research (SPOR) Network on diabetes and its complications.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.