Observational studyAtencion primaria2019
[Find your 1%: prevalence and mortality of a community cohort of people with advanced chronic disease and palliative needs].
Observational study in Atencion primaria, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07554209 (Perceptions Among Healthcare Professionals of Key Domains of Home-Based Palliative Care), which is not on this map. Cited by 16 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Perceptions Among Healthcare Professionals of Key Domains of Home-Based Palliative Care: A Multicriteria Comparative Cross-Sectional Survey (MULTIPAL)
Who cites it
16 citing papers in PubMed.
- [Identification of palliative needs, complexities and other clinical variables in complex chronic patients in primary care in Andalusia: INCO-Pal study].Atencion primaria · 2026Article
- Factors associated with a positive response to the surprise question in complex chronic patients treated by advanced practice nurses in primary care.BMC palliative care · 2026Article
- Threats to the Dignity of People with Advanced Illness Who Are Treated in Emergency Departments: A Qualitative Study.Healthcare (Basel, Switzerland) · 2024Article
- Community-Based Interventions in People with Palliative Care Needs: An Integrative Review of Studies from 2017 to 2022.Healthcare (Basel, Switzerland) · 2024Review
- [Prevalence and clinical characteristics of pain in patients with advanced chronic disease].Atencion primaria · 2023Observational
- The prognostic value of the NECPAL instrument, Palliative Prognostic Index, and PROFUND index in elderly residents of nursing homes with advanced chronic condition.BMC geriatrics · 2023Observational
- Impact of the COVID-19 Pandemic on the Perceived Quality of Palliative Care in Nursing Homes.Journal of clinical medicine · 2022Article
- NUrsing Homes End of Life care Program (NUHELP): developing a complex intervention.BMC palliative care · 2021Article
- Cultural Adaptation and Validation of the Quality of Dying in Long-Term Care Scale (QoD-LTC) for Spanish Nursing Homes.International journal of environmental research and public health · 2021Article
- Clustering Complex Chronic Patients: A Cross-Sectional Community Study From the General Practitioner's Perspective.International journal of integrated care · 2021Article
- A New Approach to the Identification of Palliative Care Needs and Advanced Chronic Patients among Nursing Home Residents.International journal of environmental research and public health · 2021Article
- Assessing Face Validity of the HexCom Model for Capturing Complexity in Clinical Practice: A Delphi Study.Healthcare (Basel, Switzerland) · 2021Article
- Frailty, Complexity, and Priorities in the Use of Advanced Palliative Care Resources in Nursing Homes.Medicina (Kaunas, Lithuania) · 2021Article
- Palliative Care Symptoms, Outcomes, and Interventions for Chronic Advanced Patients in Spanish Nursing Homes with and without Dementia.International journal of environmental research and public health · 2020Article
- [The use of resources and health expenditures by people with advanced chronic diseases in Catalonia].Atencion primaria · 2019Article
- [Every week counts: Use of health services and related costs of a community-based cohort of people with advanced chronic diseases].Atencion primariaObservational
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo determine the prevalence and profiles of people with advanced chronic diseases in Primary Care and to analyse the elements related to their mortality in order to orient strategies for improvement in this level of care.
designAn observational, analytical and prospective study during 3 years conducted on a cohort of patients with palliative needs. LOCATION: Three Primary Care teams of Osona (Catalonia).
participantsA total of 251 people identified as advanced patients using a systematic population-based strategy that included the NECPAL tool. MAIN MEASUREMENTS: Basic demographic and clinical profile (age, gender, type of residence, health stratification level and main disease); date, place, and cause of eventual deaths.
results1% of the adult Primary Care population suffer from advanced diseases, of which 56.6% are women, and with a median age of 85 years. Dementia or advanced frailty is observed in 49.3%, and only 13.7% have cancer. Just under one-quarter (24.3%) live in nursing homes. The accumulated mortality at 3 years is 62.1%, with a median survival of 23 months. Factors significantly associated with the likelihood of dying are cancer, female gender, and over-aging. Patients died at their home (47.3%), in an intermediate care hospital (37.2%), or in an acute care hospital (15.5%), depending on certain explanatory factors.
conclusionsThe prevalence and characteristics of advanced community-based disease coincide with that reported in the literature. Potentially, Primary Care is the reference level of care for these patients, especially if it incorporates nursing homes as a usual field of practice.
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