Trial reportJournal of autism and developmental disorders2018
The Autism Family Experience Questionnaire (AFEQ): An Ecologically-Valid, Parent-Nominated Measure of Family Experience, Quality of Life and Prioritised Outcomes for Early Intervention.
Trial report in Journal of autism and developmental disorders, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05827952 (The Effect of Self-efficacy and Relationship Through Behavior Modification by Hybrid Mode in Caregivers With Toddler Receiving Early Intervention), which is not on this map. Cited by 45 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
The Effect of Self-efficacy and Relationship Through Behavior Modification by Hybrid Mode in Caregivers With Toddler Receiving Early Intervention
Who cites it
45 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Research Review: Conceptualizing and measuring 'problem behavior' in early intervention autism research - a project AIM secondary systematic review.Journal of child psychology and psychiatry, and allied disciplines · 2025Pooled it
- Exploring Attachment in Adults With Autism Spectrum Disorder: A Systematic Review.Actas espanolas de psiquiatria · 2025Pooled it
- State of the Art of Family Quality of Life in Early Care and Disability: A Systematic Review.International journal of environmental research and public health · 2020Pooled it
- AutInsight: A Pilot Randomised Controlled Trial (RCT) of a Consumer-Informed Parent Support Program for Parents of Autistic Children.Journal of autism and developmental disorders · 2026Trial
- Understanding Repetitive Behaviours: A clinical and cost-effectiveness, multi-site randomised controlled trial of a group for parents and carers of young autistic children.Autism : the international journal of research and practice · 2025Trial
- Trial
- Combined social communication therapy at home and in education for young autistic children in England (PACT-G): a parallel, single-blind, randomised controlled trial.The lancet. Psychiatry · 2022Trial
- Maternal Psychological Distress and Parent-Reported Child Behavioural and Emotional Outcomes Among Mothers of Children with Autism Spectrum Disorder: A Cross-Sectional Study.Healthcare (Basel, Switzerland) · 2026Article
- Short Report: An Examination of Children's Autism Traits and Their Association With Family Experience.Autism research : official journal of the International Society for Autism Research · 2026Article
- Mechanistic trials, therapy and developmental science-An exemplar from early autism care.JCPP advances · 2026Article
- Do Child Communicative Abilities Predict Subjective Wellbeing and Satisfaction With Family Life in Caregivers of Minimally Verbal Children?Journal of autism and developmental disorders · 2026Article
- Parental Acceptance and Understanding of Autistic Children (PAUACS) - an Instrument Development Study.Journal of autism and developmental disorders · 2026Article
- Child Quality of Life as an Outcome Following Pivotal Response Treatment: Findings From Four Randomized Controlled Trials With Autistic Children.Journal of autism and developmental disorders · 2026Article
- Sociodemographic and Clinical Profile of 915 Autistic Preschoolers Engaged in Intensive Early Intervention in Australia.Journal of autism and developmental disorders · 2026Article
- Protocol for a feasibility and acceptability trial of Bloom, a co-produced and co-facilitated parent group to enhance the quality of life and well-being of young autistic children.Pilot and feasibility studies · 2026Article
- Predictors of Change in Wellbeing and Mental Health of Parents of Autistic Pre-Schoolers.Journal of autism and developmental disorders · 2025Article
- Article
- Article
- Characterising Insistence on Sameness and Circumscribed Interests: A Qualitative Study of Parent Perspectives.Journal of autism and developmental disorders · 2025Article
- Setting the Stage for an App-Based Caregiver-Mediated Intervention for Autism: Findings from A Stakeholder Consultation.Journal of autism and developmental disorders · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors.
Funding
Abstract
There is a lack of measures that reflect the intervention priorities of parents of children with autism spectrum disorder (ASD) and that assess the impact of interventions on family experience and quality of life. The Autism Family Experience Questionnaire (AFEQ) was developed through focus groups and online consultation with parents, and reflected parental priorities. It was then administered to the parents of children enrolled in the Pre-school Autism Communication Trial and its 6-year follow-up study. The AFEQ showed good convergent validity with well-established measures of child adaptive functioning, parental mental health and parental wellbeing. It was sensitive to change in response to a parent-mediated intervention for young children with autism, showing treatment effect at treatment endpoint which increased at six-year follow-up.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.