ArticleJournal of clinical nursing2018
Need of support in people with chronic obstructive pulmonary disease.
Article in Journal of clinical nursing, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
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Who cites it
17 citing papers in PubMed.
- Effects of person-centred care via telephone on self-efficacy in patients with chronic obstructive pulmonary disease: Subgroup analysis of a randomized controlled trial.Nursing open · 2021Trial
- Trial
- Chronic Obstructive Pulmonary Disease: An Analysis of Online Patient Testimony on Treatment Adherence.Journal of clinical medicine · 2025Article
- A feeling of not being alone - Patients' with COPD experiences of a group-based self-management education with a digital website: A qualitative study.Nursing open · 2024Article
- Striving for moments of easier breathing despite being trapped in breathlessness: meanings of feeling well for women with chronic obstructive pulmonary disease stage III or IV.International journal of qualitative studies on health and well-being · 2023Article
- Meaningful use of a digital platform and structured telephone support to facilitate remote person-centred care - a mixed-method study on patient perspectives.BMC health services research · 2022Article
- Informal carers in Sweden - striving for partnership.International journal of qualitative studies on health and well-being · 2021Article
- Article
- Together for the Future - Development of a Digital Website to Support Chronic Obstructive Pulmonary Disease Self-Management: A Qualitative Study.Journal of multidisciplinary healthcare · 2021Article
- Article
- Becoming more of an insider: A grounded theory study on patients' experience of a person-centred e-health intervention.PloS one · 2020Article
- Article
- Registered nurses' experiences of communication with patients when practising person-centred care over the phone: a qualitative interview study.BMC nursing · 2020Article
- Assigned nurses and a professional relationship: a qualitative study of COPD patients' perspective on a new palliative outpatient structure named CAPTAIN.BMC palliative care · 2019Article
- Usefulness and Relevance of an eHealth Tool in Supporting the Self-Management of Chronic Obstructive Pulmonary Disease: Explorative Qualitative Study of a Cocreative Process.JMIR human factors · 2018Article
- Need of support in people with chronic obstructive pulmonary disease.Journal of clinical nursing · 2018Article
- The Community Health Experience Model-value generation from person-centered health transaction network.Public health reviews · 2018Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
AIM AND
objectiveThe aim of this study was to describe peoples' experiences and expectations of support when living with chronic obstructive pulmonary disease.
methodWe conducted and analysed face-to-face or telephone interviews with 17 individuals (aged 44-77 years) diagnosed with chronic obstructive pulmonary disease. The interviewer asked open-ended questions aimed at encouraging further narration, and we analysed the participants' narratives using a phenomenological hermeneutical approach. This report adheres to the COREQ guidelines.
resultsThe overall theme suggests that people with chronic obstructive pulmonary disease describe support as shared knowledge and experiences, based on the following subthemes; similar experiences, the need of genuine professional knowledge, self-reliance versus self-blame, and the Internet - feeling safe but uncertain.
conclusionsPeople with chronic obstructive pulmonary disease find their strength through shared knowledge and dialogical support with others who have similar experiences and with professionals. A person-centred eHealth approach may be suitable for this group as it offers both collaboration and support. RELEVANCE TO CLINICAL PRACTICE: There is a demand for access to genuine professional knowledge as additional support to patients' own capabilities and needs. Patient associations were assessed as reliable sources of information and to some extent also support, but the importance of access to professional sources was also stressed.
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Registered trials
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