ArticlePsycho-oncology2018
Prognostic awareness and communication preferences among caregivers of patients with malignant glioma.
Article in Psycho-oncology, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
29 citing papers in PubMed, 2 syntheses or guidelines pooled it, 52 citations in OpenAlex.
- What outcomes do studies use to measure the impact of prognostication on people with advanced cancer? Findings from a systematic review of quantitative and qualitative studies.Palliative medicine · 2023Pooled it
- Pooled it
- How much time do we have? Longitudinal perception of prognosis in newly-diagnosed high grade glioma patients and caregivers compared to clinicians.Journal of neuro-oncology · 2021Trial
- How to talk about death? A cross-sectional survey on patients', informal caregivers' and health care professionals' views in the setting of allogenic hematopoietic stem cell transplantation.Annals of hematology · 2026Article
- Prognostic Preferences of Older Adults on Maintenance Hemodialysis and Their Care Partners: A Qualitative Study.Clinical journal of the American Society of Nephrology : CJASN · 2025Article
- Healthcare Providers' Perspectives on the Communication Challenges When Discussing Palliative Sedation: A Qualitative Study Across Eight European Countries.Journal of clinical medicine · 2025Article
- Prognostic awareness in family caregivers of patients with terminal illness: a scoping review.BMJ open · 2025Article
- The caregiver's journey: A qualitative study on the integration of family caregivers of advanced cancer patients in outpatient settings in Germany.Palliative & supportive care · 2025Article
- Cancer prognosis information-seeking among survivors and caregivers: findings from the National Cancer Institute's Cancer Information Service.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Knowledge, attitudes, and practice toward glioma of patients with neurological symptoms or diseases in henan, China.Heliyon · 2024Article
- Patient-Caregiver Dyads' Prognostic Information Preferences and Perceptions in Advanced Cancer.Journal of pain and symptom management · 2023Article
- Distress in Neuro-Oncology Patients and Its Implications for Communication.Journal of the advanced practitioner in oncology · 2023Article
- Supportive care of neurodegenerative patients.Frontiers in oncology · 2023Review
- Analysis of Internet-Based Search Patterns Utilized by Glioma Patients as Information Source.Journal of cancer education : the official journal of the American Association for Cancer Education · 2022Article
- Coping in the role as next of kin of a person with a brain tumour: a qualitative metasynthesis.BMJ open · 2022Article
- Coping with glioblastoma: prognostic communication and prognostic understanding among patients with recurrent glioblastoma, caregivers, and oncologists.Journal of neuro-oncology · 2022Article
- Easing the Journey-an Updated Review of Palliative Care for the Patient with High-Grade Glioma.Current oncology reports · 2022Review
- Effect of High-Quality Nursing Based on Comprehensive Nursing on the Postoperative Quality of Life and Satisfaction of Patients with Malignant Glioma.Evidence-based complementary and alternative medicine : eCAM · 2022Article
- Communication about Prognosis during Patient-Initiated Second Opinion Consultations in Advanced Cancer Care: An Observational Qualitative Analysis.International journal of environmental research and public health · 2021Observational
- Prognostic Awareness in Caregivers of Patients with Incurable Cancer.Journal of palliative medicine · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 3 institutions in 1 country.
Funding
Abstract
objectiveMalignant glioma (MG) is a devastating neuro-oncologic disease with almost invariably poor prognosis, yet many families facing malignant glioma have poor prognostic awareness (PA), or the awareness of the patient's incurable disease and shortened life expectancy. Accurate PA is associated with favorable medical outcomes at end-of-life for patients and psychosocial outcomes for informal caregivers (ICs) through bereavement. To date, however, no study has specifically examined PA among MG ICs and the information they receive that shapes their awareness.
methodsThirty-two ICs of patients with malignant glioma completed a semi-structured assessment of their awareness of the incurability and life expectancy of their loved one's illness, and to understand their sources of prognostic information and preferences for communication of prognostic information.
resultsTwenty-two (69%) ICs had full PA-awareness of the incurability of malignant glioma and accurate estimates of their loved ones' life expectancy. Twenty-three (72%) felt that prognostic information was extremely or very important to possess, and 16 (50%) desired more prognostic information. The majority of ICs received prognostic information from physicians and the Internet. Qualitative analyses revealed that many ICs had difficulty navigating medical encounters in which they concurrently wanted to elicit prognostic information from physicians and protect patients from such information.
conclusionsAccurate and timely PA is necessary for ICs to serve as critical members of health care teams. Interventions are needed to foster ICs' skills in navigating prognostic communication with patients and health care providers and thereby improve their ability to advocate for their loved one's wishes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.