ArticleJournal of pediatric rehabilitation medicine2017
Bowel management and continence in adults with spina bifida: Results from the National Spina Bifida Patient Registry 2009-15.
Article in Journal of pediatric rehabilitation medicine, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers.
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Who cites it
28 citing papers in PubMed, 60 citations in OpenAlex.
- Short versus mid-long-term outcome of transanal irrigation in children with spina bifida and anorectal malformations.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2018Trial
- Article
- Dental Management of Child with Myelomeningocele Associated with Type II Arnold-Chiari Malformation: Case Report and Review of Literature.International journal of clinical pediatric dentistry · 2025Article
- Day-to-day variations and effects of urinary and fecal incontinence among adults with spina bifida: An ecological momentary assessment diary pilot study.Journal of pediatric urology · 2025Article
- Clinical profile of Korean children with spina bifida: a single-center prospective cohort study.BMC pediatrics · 2024Article
- Comparing binary & ordinal definitions of urinary & stool continence outcomes: Data from the National Spina Bifida Patient Registry.Journal of pediatric urology · 2024Article
- Multidisciplinary management of people with spina bifida across the lifespan.Pediatric nephrology (Berlin, Germany) · 2024Review
- The urologist's role in bowel management of adult spina bifida: a narrative review.Translational andrology and urology · 2024Review
- Transitioning care for adolescents with spina bifida in the US: challenges for management.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2023Review
- State of the Art Bowel Management for Pediatric Colorectal Problems: Spinal Anomalies.Children (Basel, Switzerland) · 2023Review
- Identifying predictive factors for bowel control in patients with spina bifida and spinal cord injuries.Pediatric surgery international · 2023Article
- Education and employment as young adults living with spina bifida transition to adulthood in the USA: A study of the National Spina Bifida Patient Registry.Developmental medicine and child neurology · 2023Article
- Article
- Impairments and comorbidities in adults with cerebral palsy and spina bifida: a meta-analysis.Frontiers in neurology · 2023Review
- Release and highlights of the Lifespan Bowel Management Protocol produced for clinicians who manage neurogenic bowel dysfunction in individuals with spina bifida.Journal of pediatric rehabilitation medicine · 2023Article
- 2023 updates to the spina bifida transition to adult care guidelines.Journal of pediatric rehabilitation medicine · 2023Review
- Cecostomy tubes improve bowel continence for pediatric patients with spina bifida: A retrospective analysis of outcomes from a single clinic.Journal of pediatric rehabilitation medicine · 2023Article
- Multidisciplinary spina bifida clinic: the Chicago experience.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2022Review
- Pediatric Spina Bifida and Spinal Cord Injury.Journal of personalized medicine · 2022Article
- Factors Associated with Early Neonatal and First-Year Mortality in Infants with Myelomeningocele in California from 2006 to 2011.American journal of perinatology · 2021Article
Corrections and comments
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Authors and funding
10 authors at 7 institutions in 1 country.
Funding
Abstract
introductionAdvances in care have allowed most children with spina bifida (SB) to live to adulthood. The majority have neuropathic bowel dysfunction (NBD), resulting in constipation, incontinence, and diminished quality of life. We sought to 1) describe contemporary NBD management and continence outcomes of adults with SB; 2) describe differences from younger patients; and 3) assess for association with socio-economic factors.
methodsWe analyzed data on NBD management and continence from the National Spina Bifida Patient Registry (NSBPR). Patients were segregated into young children (5-11 years), adolescents (12-19 years), and adults (20 years and older). A strict definition of continence was utilized. Statistical analysis compared cohorts by gender, ethnicity, SB type, lesion level, insurance status, educational attainment, employment status, and continence.
resultsA total of 5209 SB patients were included, of whom 1370 (26.3%) were adults. Management and continence varied by age and SB type. Oral medication use did not differ between groups (5.2-6.6%). Suppositories and rectal enemas were used only by 11.5% of adults, which was significantly less than among school-aged children. Antegrade enemas were used by 17.7% of adults which was significantly less than among adolescents (27.2%). Adults were more likely to use digital stimulation or disimpaction or have undergone a colostomy. Bowel continence was reported by 58.3% of overall adult cohort: 55.6% of adults with myelomeningocele and 74.9% with non-myelomeningocele. Bowel continence was significantly associated with employment (p= 0.0002), private insurance (p= 0.0098), non-myelomeningocele type of SB (p= 0.0216) and educational attainment (p= 0.0324) on univariate analysis but only with employment on multivariable logistic regression (p= 0.0027).
conclusionsBowel management techniques differed between adults and younger patients with SB. Bowel continence was reported by over half of SB adults and was associated with socio-economic factors.
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