ArticleHealth expectations : an international journal of public participation in health care and health policy2018
Openness, inclusion and transparency in the practice of public involvement in research: A reflective exercise to develop best practice recommendations.
Article in Health expectations : an international journal of public participation in health care and health policy, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
28 citing papers in PubMed, 2 syntheses or guidelines pooled it, 39 citations in OpenAlex.
- Pooled it
- Frameworks for supporting patient and public involvement in research: Systematic review and co-design pilot.Health expectations : an international journal of public participation in health care and health policy · 2019Pooled it
- Applying the UK standards for public involvement: reflections and lessons from case studies across the UK.Research involvement and engagement · 2026Article
- Balancing Trade-Offs in Patient and Public Involvement and Engagement in Rapid Evaluation: Reflections and Lessons.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Operationalizing Trauma-Informed Principles to Build Safe, Inclusive, and Equitable Patient Partnerships in Pediatric Pain Research.Journal of pain research · 2026Article
- Evaluating the Involvement of People With Cancer and Informal Caregivers in the Development Process of a New Set of Quality of Life Questionnaires.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Exploring the purpose and stages of patient and public involvement and engagement (PPIE) in audiology research: a case study approach.Research involvement and engagement · 2025Article
- Article
- Art and design workshops at a residential care facility - social care professionals' experiences of co-creation and participation in designing the physical environment.BMC health services research · 2024Article
- Training and peer-group coaching for pairs of researchers and patient representatives to support continuous two-way learning.Research involvement and engagement · 2024Article
- Collaborating with cancer patients and informal caregivers in a European study on quality of life: protocol to embed patient and public involvement within the EUonQoL project.Research involvement and engagement · 2024Review
- Rationalizing the Influence of Co-Design on Distress, Clinical Decision-Making and Disease Self-Management of Cancer Patients-as-Partners: A Quasi-Experimental Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- A framework for remotely enabled co-design with young people: its development and application with neurodiverse children and their caregivers.Frontiers in psychiatry · 2024Article
- Assessing the impact of university students' involvement in the first year of Nurture-U: a national student wellbeing research project.Research involvement and engagement · 2023Article
- A rocky road but worth the drive: A longitudinal qualitative study of patient innovators and researchers cocreating research.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Effective approaches to public involvement in care home research: a systematic review and narrative synthesis.Research involvement and engagement · 2023Article
- Partnering with people living with dementia and care partners in technology research and design: Reflections and recommendations.Australian occupational therapy journal · 2022Article
- Capturing learning from public involvement with people experiencing homelessness to help shape new physiotherapy research: Utilizing a reflective model with an under-served, vulnerable population.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Patient and researcher experiences of patient engagement in primary care health care research: A participatory qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Co-design of a Smartphone App for People Living With Dementia by Applying Agile, Iterative Co-design Principles: Development and Usability Study.JMIR mHealth and uHealth · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 6 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
contextReflective accounts of public involvement in research (PI) are important for helping researchers plan and deliver more effective PI activities. In particular, there is a need to address power differentials between team members that can prohibit effective and meaningful involvement.
objectiveTo critically reflect on the PI practices that underpinned our research project on intimacy and sexuality in care homes, to develop a series of recommendations for improving future PI activities.
settingThe research team comprised five academics from nursing, public health, sociology and psychology, and two members of the public with experience of sex education, and lesbian, gay, bisexual and trans issues in older populations. In order to address power differentials within the group, we developed an approach to PI practice that was grounded in values of openness, inclusion and transparency.
methodReflective commentaries on the strengths and weaknesses of the team's approach to PI were gathered through interviews and open-ended questionnaires with research team members. These views were collated and discussed at a workshop comprising research team members and an additional member of the public to generate recommendations for future PI practice.
resultsA number of strengths and limitations of our approach to PI were identified. Clear recommendations for improving PI practice were developed for three broad areas of identified difficulty: (i) communication within and between meetings; (ii) the roles and responsibilities of team members; and (iii) PI resources and productivity. DISCUSSION AND
conclusionThese recommendations add to the developing body of guidance for conducting effective PI.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.