ArticleThe journal of maternal-fetal & neonatal medicine : the official journal of the European Association of Perinatal Medicine, the Federation of Asia and Oceania Perinatal Societies, the International Society of Perinatal Obstetricians2019
Prospective parents' perspectives on antenatal decision making for the anticipated birth of a periviable infant.
Article in The journal of maternal-fetal & neonatal medicine : the official journal of the European Association of Perinatal Medicine, the Federation of Asia and Oceania Perinatal Societies, the International Society of Perinatal Obstetricians, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 51 citations in OpenAlex.
- Evaluating the Use of a Decision Aid for Parents Facing Extremely Premature Delivery: A Randomized Trial.The Journal of pediatrics · 2019Trial
- How parents derive their informed role preferences for end-of-life medical decision-making for (unborn) children in perinatology: a meta-ethnography of qualitative interview studies.BMC medical ethics · 2026Article
- Parental Involvement in Decision-Making About Planned Late Preterm and Early Term Birth (The "PIP" Study): Part 1-A Reflexive Thematic Analysis of Interviews With Parents.Birth (Berkeley, Calif.) · 2026Article
- When external factors limit care options for complex fetal and neonatal diagnoses.Journal of perinatology : official journal of the California Perinatal Association · 2025Review
- Balancing survival and suffering: factors influencing parental decision making after periviable consultation.Journal of perinatology : official journal of the California Perinatal Association · 2025Article
- Supporting parents' emotional and mental health in the antenatal consultation.Journal of perinatology : official journal of the California Perinatal Association · 2025Review
- The impact of standardization of care for neonates born at 22-23 weeks gestation.Journal of perinatology : official journal of the California Perinatal Association · 2025Article
- Legal and Ethical Issues in Periviable Decision-Making in the Current Moment.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2025Article
- "It feels like you have to choose one or the other": a qualitative analysis of obstetrician focus groups on periviability counseling.Journal of perinatal medicine · 2024Article
- A Patient Interview-Based Needs Assessment and Evaluation of Experiences with Periviable Pregnancies.Hawai'i journal of health & social welfare · 2024Article
- Withdrawal and withholding of life sustaining treatment (WWLST): an under recognised factor in the morbidity or mortality of periviable infants?-a narrative review.Translational pediatrics · 2024Review
- Uncharted territory: a narrative review of parental involvement in decision-making about late preterm and early term delivery.BMC pregnancy and childbirth · 2023Review
- The patient/physician relationship in a post-Roe world: a neonatologist viewpoint.Journal of perinatology : official journal of the California Perinatal Association · 2023Review
- A Qualitative Study of Parental Perspectives on Prenatal Counseling at Extreme Prematurity.The Journal of pediatrics · 2022Article
- Active Treatment of Infants Born at 22-25 Weeks of Gestation in California, 2011-2018.The Journal of pediatrics · 2022Observational
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- Individualised decision making: interpretation of risk for extremely preterm infants-a survey of UK neonatal professionals.Archives of disease in childhood. Fetal and neonatal edition · 2022Article
- Article
- User-testing of a decision-support tool for parents facing threatened periviable delivery: The Periviable GOALS decision aid.Patient education and counseling · 2021Article
- Regional and Racial-Ethnic Differences in Perinatal Interventions Among Periviable Births.Obstetrics and gynecology · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 7 institutions in 1 country.
Funding
Abstract
objectiveTo examine prospective parents' perceptions of management options and outcomes in the context of threatened periviable delivery, and the values they apply in making antenatal decisions during this period. STUDY
designQualitative analysis of 46 antenatal interviews conducted at three tertiary-care hospitals with 54 prospective parents (40 pregnant women, 14 partners) who had received counseling for threatened periviable delivery (40 cases).
resultsParticipants most often recalled being involved in resuscitation, cerclage, and delivery mode decisions. Over half (63.0%) desired a shared decision-making role. Most (85.2%) recalled hearing about morbidity and mortality, with many reiterating terms like "brain damage", "disability", and "handicap". The potential for disability influenced decision making to variable degrees. In describing what mattered most, participant spoke of giving their child a "fighting chance"; others voiced concerns about "best interest", a "healthy baby", "pain and suffering", and religious faith.
conclusionsOur findings underscore the importance of presenting clear information on disability and eliciting the factors that parents deem most important in making decisions about periviable birth.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.