Evidence map›Paper›PMID 29103318›Full record

ArticleThe journal of maternal-fetal & neonatal medicine : the official journal of the European Association of Perinatal Medicine, the Federation of Asia and Oceania Perinatal Societies, the International Society of Perinatal Obstetricians2019

Prospective parents' perspectives on antenatal decision making for the anticipated birth of a periviable infant.

Brownsyne Tucker Edmonds, Teresa A Savage, Robert E Kimura, Sarah J Kilpatrick, Miriam Kuppermann, William Grobman, Karen Kavanaugh

Abstract readMulticenter Study
In one paragraph

Article in The journal of maternal-fetal & neonatal medicine : the official journal of the European Association of Perinatal Medicine, the Federation of Asia and Oceania Perinatal Societies, the International Society of Perinatal Obstetricians, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.

0numbers the graph read from it
0cells of the map it votes in
22citing papers in PubMed
5.3field-weighted citation impact, top 5% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

22 citing papers in PubMed, 51 citations in OpenAlex.

  1. Trial
  2. Article
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  4. When external factors limit care options for complex fetal and neonatal diagnoses.Journal of perinatology : official journal of the California Perinatal Association · 2025
    Review
  5. Balancing survival and suffering: factors influencing parental decision making after periviable consultation.Journal of perinatology : official journal of the California Perinatal Association · 2025
    Article
  6. Supporting parents' emotional and mental health in the antenatal consultation.Journal of perinatology : official journal of the California Perinatal Association · 2025
    Review
  7. The impact of standardization of care for neonates born at 22-23 weeks gestation.Journal of perinatology : official journal of the California Perinatal Association · 2025
    Article
  8. Legal and Ethical Issues in Periviable Decision-Making in the Current Moment.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2025
    Article
  9. Article
  10. Article
  11. Review
  12. Review
  13. The patient/physician relationship in a post-Roe world: a neonatologist viewpoint.Journal of perinatology : official journal of the California Perinatal Association · 2023
    Review
  14. Article
  15. Observational
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 7 institutions in 1 country.

Brownsyne Tucker Edmondsa Department of Obstetrics and Gynecology , Indiana University School of Medicine , Indianapolis , IN , USA.
Teresa A Savageb Department of Women, Children & Family Health Science , University of Illinois at Chicago , Chicago , IL , USA.
Robert E Kimurac Department of Pediatrics , Rush University Medical Center , Chicago , IL , USA.
Sarah J Kilpatrickd Department of Obstetrics and Gynecology , Cedars-Sinai Medical Center , Los Angeles , CA , USA.
Miriam Kuppermanne Department of Obstetrics, Gynecology & Reproductive Sciences , University of California , San Francisco , CA , USA.
William Grobmanf Obstetrics and Gynecology-Maternal Fetal Medicine , Northwestern University Medical School , Chicago , IL , USA.
Karen Kavanaughg Wayne State University College of Nursing and the Children's Hospital of Michigan , Detroit , MI , USA.
Cedars-Sinai Medical Center · USIndiana University School of MedicineNorthwestern University · USRush University Medical Center · USUniversity of California, San Francisco · USUniversity of Illinois Chicago · USWayne State University · US

Funding

Life Support Decisions for Extremely Premature InfantsR01NR007904 · NINR · UNIVERSITY OF ILLINOIS AT CHICAGO · PI KAVANAUGH, KAREN L · 2004 to 2007
$1.7M
NINR NIH HHS R01 NR007904
6 · The paper itself

Abstract

objectiveTo examine prospective parents' perceptions of management options and outcomes in the context of threatened periviable delivery, and the values they apply in making antenatal decisions during this period. STUDY

designQualitative analysis of 46 antenatal interviews conducted at three tertiary-care hospitals with 54 prospective parents (40 pregnant women, 14 partners) who had received counseling for threatened periviable delivery (40 cases).

resultsParticipants most often recalled being involved in resuscitation, cerclage, and delivery mode decisions. Over half (63.0%) desired a shared decision-making role. Most (85.2%) recalled hearing about morbidity and mortality, with many reiterating terms like "brain damage", "disability", and "handicap". The potential for disability influenced decision making to variable degrees. In describing what mattered most, participant spoke of giving their child a "fighting chance"; others voiced concerns about "best interest", a "healthy baby", "pain and suffering", and religious faith.

conclusionsOur findings underscore the importance of presenting clear information on disability and eliciting the factors that parents deem most important in making decisions about periviable birth.

Indexed as

Decision MakingFetal ViabilityFemaleHumansLife Support CareMaleParentsPregnancyQualitative Researchantenatal counselingDecision makingparentspremature infantsvalues

Identifiers

PMID29103318
PMCPMC6810652
OpenAlexW2767803727

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.