ArticleThe Journal of pediatrics2018
Shared Decision Making among Children with Medical Complexity: Results from a Population-Based Survey.
Article in The Journal of pediatrics, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed, 45 citations in OpenAlex.
- Novel Web-Based Technology to Promote Goal-Setting in Complex Chronic Illness: Randomized Controlled Trial.JMIR human factors · 2026Trial
- Care complexity and inequities in caregiving time for undiagnosed infants and toddlers with special health care needs: a cross-sectional study in Japan.International journal for equity in health · 2025Article
- Understanding the complexity of decision-making for mothers of young children with ambulatory cerebral palsy: A qualitative phenomenological study.Developmental medicine and child neurology · 2025Article
- Caregiver Values and Preferences Related to Surgical Decision-Making for Children with Medical Complexity.The Journal of pediatrics · 2025Article
- Shared decision-making for children with medical complexity in community health services: a scoping review.BMJ paediatrics open · 2023Article
- An interdisciplinary intervention for children with complex health complaints; a feasibility study of selection criteria.Frontiers in pediatrics · 2023Article
- Rare, epilepsy-related disorder including intellectual disability - A scoping review of caregivers' identified information needs.Journal of intellectual disabilities : JOID · 2022Article
- Decision-making for Parents of Children With Medical Complexities: Activity Theory Analysis.Journal of participatory medicine · 2022Article
- Development and validation of a novel informational booklet for pediatric long-term ventilation decision support.Pediatric pulmonology · 2021Article
- Perspectives on team communication challenges in caring for children with medical complexity.BMC health services research · 2021Article
- Most Children With Medical Complexity Do Not Receive Care in Well-Functioning Health Care Systems.Hospital pediatrics · 2021Article
- Interdisciplinary Approaches Suggested for Children With Multiple Hospital Referrals Presenting With Non-specific Conditions.Frontiers in pediatrics · 2021Article
- "The Whole Game is Changing and You've Got Hope": Australian Perspectives on Treatment Decision Making in Spinal Muscular Atrophy.The patient · 2020Article
- Health and Economic Outcomes of Posterior Spinal Fusion for Children With Neuromuscular Scoliosis.Hospital pediatrics · 2020Article
- Creating a Pharmacotherapy Collaborative Practice Network to Manage Medications for Children and Youth: A Population Health Perspective.Children (Basel, Switzerland) · 2019Article
- Parents' Expressions of Concerns and Hopes for the Future and Their Concomitant Assessments of Disability in Their Children.Clinical medicine insights. Pediatrics · 2018Article
- Shared Decision-Making in Growth Hormone Therapy-Implications for Patient Care.Frontiers in endocrinology · 2018Review
- A Qualitative Study of Family Caregiver Perceptions of High-Quality Care at a Pediatric Complex Care Center.Academic pediatricsArticle
- Parents' Assessment of Disability in Their Children With Down Syndrome.Child neurology openArticle
- Parent Perspectives in Shared Decision-Making for Children With Medical Complexity.Academic pediatricsArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 3 institutions in 2 countries.
Funding
Abstract
objectiveTo compare the rates of shared decision making (SDM) reported by parents of children with medical complexity (CMC) with the rates of SDM reported by parents of noncomplex children with special health care needs (CSHCN). STUDY
designWe examined the 2009-2010 National Survey of Children with Special Health Care Needs, a representative survey of 40 242 parents of CSHCN. CMC was defined as needing or using more medical care than usual, seeing 2 or more subspecialists, and positive response on at least 3 other items on the CSHCN screener. We identified 3 subgroups each of CMC and noncomplex CSHCN by sentinel diagnoses: asthma, seizures, and other diagnoses. SDM was defined as a binary composite variable, derived from 4 discrete items. We constructed 4 stepwise multivariable models to assess the relative odds of SDM, adjusted for sociodemographic characteristics (age, income, language, race, ethnicity, and marital status), behavioral comorbidity, family-centered care, and patient-centered medical home.
resultsThe study population included 39 876 respondents. Compared with noncomplex CSHCN, CMC had a lower likelihood of SDM (aOR, 0.76; 95% CI, 0.64-0.91), which persisted in diagnostic subgroups: CMC with asthma (aOR, 0.67; 95% CI, 0.49-0.92) and CMC with other diagnoses (aOR, 0.74; 95% CI, 0.58-0.94), but not CMC with seizures (aOR, 0.95; 95% CI, 0.59-1.51).
conclusionsSDM is less common for CSHCN with complex needs than those without complex needs. Health system interventions targeting future-oriented care planning may improve SDM for CMC.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.