ArticleBMJ open2017
Long-Term Conditions Questionnaire (LTCQ): initial validation survey among primary care patients and social care recipients in England.
Article in BMJ open, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 1 of them a synthesis that pooled it.
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Who cites it
24 citing papers in PubMed, 1 synthesis or guideline pooled it, 27 citations in OpenAlex.
- Measuring treatment burden related to general practice in patients with multimorbidity: development and validation of a PROM.Family medicine and community health · 2025Pooled it
- PEER CONNECT: a pragmatic feasibility randomised controlled trial of peer coaching for adults with long-term conditions.BMJ open · 2024Trial
- Health literacy, medication adherence, and quality-of-life scores in Jordanian adults with chronic diseases: a dual analytical study using the long-term conditions questionnaire and the EuroQol five-dimension three-level questionnaire.The Libyan journal of medicine · 2026Article
- Living well with long-term conditions: A quantitative investigation into the influences of illness and healthcare experiences.Chronic illness · 2026Article
- Psychometric properties, and cultural appropriateness, of patient reported outcome measures for use in primary healthcare: a scoping review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- What Are the Important Health and Well-Being Outcome Dimensions for Parent Carers of Disabled Children? A Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Validation of the Arabic Version of the Long-Term Conditions Questionnaire (LTCQ): A Study of Factor and Rasch Analyses.Healthcare (Basel, Switzerland) · 2025Article
- Application of the PAPERS Grading Criteria Within a Rapid Evidence Review to Determine the Psychometric and Pragmatic Properties of Patient Empowerment Tools.Journal of patient experience · 2024Article
- Living well while providing support: validation of LTCQ-Carer for assessing informal carers' quality of life.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- First validation study of the living with long term conditions scale (LwLTCs) among English-speaking population living with Parkinson's disease.Health and quality of life outcomes · 2023Observational
- Development and testing of the reliability and validity of a Chinese version of the Long-Term Conditions Questionnaire.Zhejiang da xue xue bao. Yi xue ban = Journal of Zhejiang University. Medical sciences · 2023Article
- Protocol for a pragmatic feasibility randomised controlled trial of peer coaching for adults with long-term conditions: PEER CONNECT.BMJ open · 2022Article
- Refinement of the Well-being in Pregnancy (WiP) questionnaire: cognitive interviews with women and healthcare professionals and a validation survey.BMC pregnancy and childbirth · 2022Article
- Assessing the Validity of the Long-Term Conditions Questionnaire (LTCQ) in Women During Pregnancy and the First Year Following Birth.Patient related outcome measures · 2022Article
- Living with Chronic Illness Scale: International validation through the classic test theory and Rasch analysis among Spanish-speaking populations with long-term conditions.Health expectations : an international journal of public participation in health care and health policy · 2021Observational
- Living with Long term condition Scale: A pilot validation study of a new person centred tool in the UK.Nursing open · 2021Article
- Exploring the use of health and wellbeing measures during pregnancy and the first year following birth in women living with pre-existing long-term conditions: qualitative interviews with women and healthcare professionals.BMC health services research · 2021Article
- Use of the Long-Term Conditions Questionnaire (LTCQ) for monitoring health-related quality of life in people affected by cognitive impairment including dementia: pilot study in UK memory clinic services.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Article
- Rasch analysis of the long-term conditions questionnaire (LTCQ) and development of a short-form (LTCQ-8).Health and quality of life outcomes · 2020Article
- Estimating EQ-5D utilities based on the Short-Form Long Term Conditions Questionnaire (LTCQ-8).Health and quality of life outcomes · 2020Article
Corrections and comments
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Authors and funding
15 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveThe aim of this study was to validate a new generic patient-reported outcome measure, the Long-Term Conditions Questionnaire (LTCQ), among a diverse sample of health and social care users in England.
designCross-sectional validation survey. Data were collected through postal surveys (February 2016-January 2017). The sample included a healthcare cohort of patients recruited through primary care practices, and a social care cohort recruited through local government bodies that provide social care services.
participants1211 participants (24% confirmed social care recipients) took part in the study. Healthcare participants were recruited on the basis of having one of 11 specified long-term conditions (LTCs), and social care participants were recruited on the basis of receiving social care support for at least one LTC. The sample exhibited high multimorbidity, with 93% reporting two or more LTCs and 43% reporting a mental health condition. OUTCOME MEASURES: The LTCQ's construct validity was tested with reference to the EQ-5D (5-level version), the Self-Efficacy for Managing Chronic Disease scale, an Activities of Daily Living scale and the Bayliss burden of morbidity scale.
resultsLow levels of missing data for each item indicate acceptability of the LTCQ across the sample. The LTCQ exhibits high internal consistency (Cronbach's α=0.95) across the scale's 20 items and excellent test-retest reliability (intraclass correlation coefficient=0.94, 95% CI 0.93 to 0.95). Associations between the LTCQ and all reference measures were moderate to strong and in the expected directions, indicating convergent construct validity.
conclusionsThis study provides evidence for the reliability and validity of the LTCQ, which has potential for use in both health and social care settings. The LTCQ could meet a need for holistic outcome measurement that goes beyond symptoms and physical function, complementing existing measures to capture fully what it means to live well with LTCs.
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