ArticleInternational journal of environmental research and public health2017
Self-Determination in Health Research: An Alaska Native Example of Tribal Ownership and Research Regulation.
Article in International journal of environmental research and public health, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 45 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
45 citing papers in PubMed, 65 citations in OpenAlex.
- Artificial intelligence/machine learning in Alaska Native healthcare systems: symposium perspectives.International journal of circumpolar health · 2026Article
- Barriers and facilitators at pre-implementation of a type 2 diabetes screening program in dental care using the consolidated framework for implementation research and the theoretical domains framework.BMC health services research · 2026Article
- Where to Next for Māori Health Research Review Processes? Insights Into the Indigenous Context: An Integrative Systematic Literature Review.Journal of the Royal Society of New Zealand · 2026Review
- Pilot Test of Diabetes Screening and Referral to Primary Care Within an Alaska Native Dental Clinic: Protocol for a Feasibility Study.JMIR research protocols · 2026Article
- A workshop considering genetic research and data collection with American Indian and Alaska Native people outside of Tribal jurisdiction.Frontiers in genetics · 2026Article
- Amplifying Cultural Values with Collaborative Photo-Elicitation: Strengths-Focused Co-Design with Alaska Native People.DIS. Designing Interactive Systems (Conference) · 2025Article
- Trusted partners, community priorities, and data protections: requirements for precision medicine research with Alaska Native peoples.Journal of community genetics · 2025Article
- Addressing Colorectal Cancer Among Alaska Native Peoples: A Community and Subject Matter Expert Symposium.Gastro hep advances · 2025Article
- Evidence-based screening, clinical care and health education recommendations for Alaska Native peoples with prediabetes living in southcentral Alaska: findings from the Alaska EARTH follow-up study.International journal of circumpolar health · 2024Article
- Qualitative genomic research with Indigenous peoples: a scoping review of participatory practice.BMJ global health · 2024Article
- [Ligamentous and meniscal injuries of the pediatric knee joint].Orthopadie (Heidelberg, Germany) · 2024Article
- Acceptability and feasibility of an intervention for Alaska Native and American Indian couples.Family relations · 2024Article
- Enhancing Health Research Results Dissemination for American Indian and Alaska Native Communities through Indigenous Community-Centered Design.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2024Article
- Identification of Sociodemographic, Clinical, and Genetic Factors to Aid Alaska Native and American Indian People to Successfully Quit Smoking.Nicotine & tobacco research : official journal of the Society for Research on Nicotine and Tobacco · 2024Observational
- The CPT1A Arctic variant: perspectives of community members and providers in two Alaska tribal health settings.Journal of community genetics · 2023Article
- Cancer Screening Prevalence among Participants in the Southcentral Alaska Education and Research towards Health (EARTH) Study at Baseline and Follow-Up.International journal of environmental research and public health · 2023Article
- Genetic research with Indigenous Peoples: perspectives on governance and oversight in the US.Frontiers in research metrics and analytics · 2023Article
- Engaging Stakeholders in Social Determinants of Health Quality Improvement Efforts.The Permanente journal · 2022Article
- Evolving perceptions of COVID-19 vaccines among remote Alaskan communities.International journal of circumpolar health · 2022Article
- Patient and primary care perspectives on hypertension management: short report of a qualitative study in a tribal health system.International journal of circumpolar health · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 1 institution in 1 country.
Funding
Abstract
Alaska Native (AN) and American Indian (AI) people are underrepresented in health research, yet many decline to participate in studies due to past researcher misconduct. Southcentral Foundation (SCF), an Alaska Native-owned and operated health care organization, is transforming the relationship between researchers and the tribal community by making trust and accountability required features of health research in AN/AI communities. In 1998, SCF assumed ownership from the federal government of health services for AN/AI people in south central Alaska and transformed the health system into a relationship-based model of care. This change reimagines how researchers interact with tribal communities and established community oversight of all health research conducted with AN/AI people in the region. We describe the SCF research review process, which requires tribal approval of the research concept, full proposal, and dissemination products, as well as local institutional review board approval, and a researcher-signed contract. This review evaluates research through the lens of tribal principles, practices, and priorities. The SCF example provides a framework for other tribes and organizations seeking to reshape the future of health research in AN/AI communities.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.