ArticleAmerican journal of law & medicine2016
Barbarians at the Gate: Consumer-Driven Health Data Commons and the Transformation of Citizen Science.
Article in American journal of law & medicine, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed.
- Special Collection Editorial: The digital movement in nursing.Journal of research in nursing : JRN · 2022Article
- "Idealists and capitalists": ownership attitudes and preferences in genomic citizen science.New genetics and society · 2022Article
- Advancing nursing participation in user-centred design.Journal of research in nursing : JRN · 2020Article
- Research data management in health and biomedical citizen science: practices and prospects.JAMIA open · 2020Article
- Return of Results in Participant-Driven Research: Learning from Transformative Research Models.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2020Article
- Donors, authors, and owners: how is genomic citizen science addressing interests in research outputs?BMC medical ethics · 2019Article
- Registry stakeholders.EFORT open reviews · 2019Review
- Taking patient involvement seriously: a critical ethical analysis of participatory approaches in data-intensive medical research.BMC medical informatics and decision making · 2019Article
- The Role of Participants in a Medical Information Commons.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2019Article
- People-powered data collaboratives: fueling data science with the health-related experiences of individuals.Journal of the American Medical Informatics Association : JAMIA · 2019Article
- THE GENETIC INFORMATION NONDISCRIMINATION ACT AT AGE 10: GINA'S CONTROVERSIAL ASSERTION THAT DATA TRANSPARENCY PROTECTS PRIVACY AND CIVIL RIGHTS.William and Mary law review · 2019Article
- Response to Dreyfus and Sobel.American journal of human genetics · 2018Article
- Is there a duty to participate in digital epidemiology?Life sciences, society and policy · 2018Article
- Health Research with Big Data: Time for Systemic Oversight.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2018Article
- Participant-Partners in Genetic Research: An Exome Study with Families of Children with Unexplained Medical Conditions.Journal of participatory medicine · 2018Article
- Sharing data under the 21st Century Cures Act.Genetics in medicine : official journal of the American College of Medical Genetics · 2017Review
- Creating a data resource: what will it take to build a medical information commons?Genome medicine · 2017Article
- Developing and Evaluating Digital Interventions to Promote Behavior Change in Health and Health Care: Recommendations Resulting From an International Workshop.Journal of medical Internet research · 2017Article
- Power to the People: Data Citizens in the Age of Precision Medicine.Vanderbilt journal of entertainment and technology law · 2017Article
- Trust and Expectations of Researchers and Public Health Departments for the Use of HIV Molecular Epidemiology.AJOB empirical bioethicsArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author.
Funding
Abstract
"The expression 'barbarians at the gate' was … used by the Romans to describe foreign attacks against their empire."
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.