ArticleBMC pulmonary medicine2017
Knowledge gaps in patients with COPD and their proxies.
Article in BMC pulmonary medicine, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
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The trial behind it
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Who cites it
19 citing papers in PubMed.
- Co-Design of an Electronic Patient Record-Integrated COPD Self-Management App: The My Lung Health Coach Companion.International journal of chronic obstructive pulmonary disease · 2026Article
- Effectiveness of expert-assisted video-based learning on disease-specific knowledge among hospitalized chronic obstructive pulmonary disease patients.Journal of education and health promotion · 2026Article
- Motivation and preferences for learning of patients with COPD or asthma and their significant others in pulmonary rehabilitation: a qualitative study.ERJ open research · 2024Article
- Validation of an Inhaled Therapy Beliefs Questionnaire in Patients with Chronic Obstructive Pulmonary Disease.Journal of clinical medicine · 2024Article
- Association of Patients' Knowledge on the Disease and Its Management with Indicators of Disease Severity and Individual Characteristics in Patients with Chronic Obstructive Pulmonary Disease (COPD): Results from COSYCONET 2.Patient preference and adherence · 2024Article
- Impact of telephone follow-up on COPD outcomes in pulmonary rehabilitation patients: A randomized clinical trial.Canadian journal of respiratory therapy : CJRT = Revue canadienne de la therapie respiratoire : RCTR · 2023Article
- Bridging the "Know-Do" Gaps in Five Non-Communicable Diseases Using a Common Framework Driven by Implementation Science.Journal of healthcare leadership · 2023Review
- Knowledge of Vaccination Against Influenza and Pneumococcus in Patients with Chronic Obstructive Pulmonary Disease in an Integrated Care Program.International journal of chronic obstructive pulmonary disease · 2023Article
- Determinants in the Underdiagnosis of COPD in Spain-CONOCEPOC Study.Journal of clinical medicine · 2022Article
- People living with moderate-to-severe COPD prefer improvement of daily symptoms over the improvement of exacerbations: a multicountry patient preference study.ERJ open research · 2022Article
- Short-Video Apps as a Health Information Source for Chronic Obstructive Pulmonary Disease: Information Quality Assessment of TikTok Videos.Journal of medical Internet research · 2021Article
- Physical, Psychological, and Social Factors Associated with Exacerbation-Related Hospitalization in Patients with COPD.Journal of clinical medicine · 2020Article
- Improving detection of work-related asthma: a review of gaps in awareness, reporting and knowledge translation.Allergy, asthma, and clinical immunology : official journal of the Canadian Society of Allergy and Clinical Immunology · 2020Review
- Predictors of Low-Level Disease-Specific Knowledge in Patients with Chronic Obstructive Pulmonary Disease.International journal of chronic obstructive pulmonary disease · 2020Article
- Association Between Health Literacy, Electronic Health Literacy, Disease-Specific Knowledge, and Health-Related Quality of Life Among Adults With Chronic Obstructive Pulmonary Disease: Cross-Sectional Study.Journal of medical Internet research · 2019Article
- Revealing Methodological Challenges in Chronic Obstructive Pulmonary Disease Studies Assessing Comorbidities: A Narrative Review.Chronic obstructive pulmonary diseases (Miami, Fla.) · 2019Review
- Palliative care as an emerging role for respiratory health professionals: Findings from a cross-sectional, exploratory Canadian survey.Canadian journal of respiratory therapy : CJRT = Revue canadienne de la therapie respiratoire : RCTR · 2019Article
- Usefulness and Relevance of an eHealth Tool in Supporting the Self-Management of Chronic Obstructive Pulmonary Disease: Explorative Qualitative Study of a Cocreative Process.JMIR human factors · 2018Article
- Patients' perspective of the impact of COPD on quality of life: a focus group study for patients with COPD.International journal of clinical pharmacy · 2018Article
Corrections and comments
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Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAlthough proxies of patients with chronic obstructive pulmonary disease (COPD) need health-related knowledge to support patients in managing their disease, their current level of knowledge remains unknown. We aimed to compare health-related knowledge (generic and COPD-related knowledge) between patients with COPD and their resident proxies.
methodsIn this cross-sectional study, we included stable patients with moderate to very severe COPD and their resident proxies (n = 194 couples). Thirty-four statements about generic health and COPD-related topics were assessed in patients and proxies separately. Statements could be answered by 'true', 'false', or 'do not know'. This study is approved by the Medical Research Ethics Committees United (MEC-U), the Netherlands (NL42721.060.12/M12-1280).
resultsPatients answered on average 17% of the statements incorrect, and 19% with 'do not know'. The same figure (19%) for the incorrect and unknown statements was shown by proxies. Patients who attended pulmonary rehabilitation previously answered more statements correct (about three) compared to patients who did not attend pulmonary rehabilitation. More correct answers were reported by: younger patients, patients with a higher level of education, patients who previously participated in pulmonary rehabilitation, patients with better cognitive functioning, and patients with a COPD diagnosis longer ago.
conclusionsProxies of patients with COPD as well as patients themselves answer about two third of 34 knowledge statements about COPD correct. So, both patients and proxies seem to have an incomplete knowledge about COPD and general health. Therefore, education about general health and COPD should be offered to all subgroups of patients with COPD and their proxies.
trial registrationThis study is registered in the Dutch Trial Register ( NTR3941 ). Registered 19 April 2013.
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