Evidence map›Paper›PMID 29081920›Full record

ArticleJournal of market access & health policy2017

The perverse impact of external reference pricing (ERP): a comparison of orphan drugs affordability in 12 European countries. A call for policy change.

K E Young, I Soussi, M Toumi

Open access · goldAbstract read
In one paragraph

Article in Journal of market access & health policy, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
18citing papers in PubMed, 1 pooled it
15.9field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

18 citing papers in PubMed, 1 synthesis or guideline pooled it, 29 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
  4. Price determinants and pricing policies concerning potentially innovative health technologies: a scoping review.The European journal of health economics : HEPAC : health economics in prevention and care · 2026
    Article
  5. Review
  6. Article
  7. Review
  8. Article
  9. Inequities in kidney health and kidney care.Nature reviews. Nephrology · 2023
    Review
  10. Literature Review on Health Emigration in Rare Diseases-A Machine Learning Perspective.International journal of environmental research and public health · 2023
    Review
  11. Article
  12. Article
  13. Article
  14. Review
  15. Public spending on orphan medicines: a review of the literature.Journal of pharmaceutical policy and practice · 2020
    Article
  16. Article
  17. Non-profit drug research and development: the case study of Genethon.Journal of market access & health policy · 2019
    Article
  18. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors at 2 institutions in 1 country.

K E YoungPricing, Reimbursement, and Market Access, Creativ-Ceutical, Paris, France.
I SoussiPricing, Reimbursement, and Market Access, Creativ-Ceutical, Tunis, Tunisia.
M ToumiDepartment of Public Health, Aix-Marseille Université, Marseille, France.ORCID 0000-0001-7939-7204
Aix-Marseille Université · FRCreativ-Ceutical (France) · FR

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

PubMed holds no abstract for this paper.

Indexed as

ability to payaffordabilitydifferential pricingEuropeexternal reference pricingorphan drugspricingRare diseasesrelative coststreatment cost

Identifiers

PMID29081920
PMCPMC5645904
OpenAlexW2751699775

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.